dc.contributor.author |
Malpas, Phillipa |
en |
dc.coverage.spatial |
England |
en |
dc.date.accessioned |
2012-03-04T23:50:36Z |
en |
dc.date.issued |
2006 |
en |
dc.identifier.citation |
Journal of Medical Ethics 32(11):639-642 2006 |
en |
dc.identifier.issn |
0306-6800 |
en |
dc.identifier.uri |
http://hdl.handle.net/2292/12798 |
en |
dc.description.abstract |
This paper first considers why it is important to give children genetic information about hereditary conditions in the family, which will go on to affect their lives in a salient way. If it is important to inform children that they are at risk for an adult-onset disease that exists in the family, why should they not also grow up knowing whether they actually carry the genetic mutation? Central to this discussion is the importance of the process of disclosure and the environment in which genetic information is divulged. It is concluded that the reasons given for defending disclosure of genetic conditions in the family to children are also important reasons to cautiously defend predictive genetic testing of children for adult-onset diseases. |
en |
dc.language |
eng |
en |
dc.publisher |
BMJ Publishing Group Ltd and Institute of Medical Ethics |
en |
dc.relation.ispartofseries |
Journal of Medical Ethics |
en |
dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. Details obtained from http://www.sherpa.ac.uk/romeo/issn/0306-6800/ |
en |
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
en |
dc.subject |
Age of Onset |
en |
dc.subject |
Child |
en |
dc.subject |
Child Psychology |
en |
dc.subject |
Family Health |
en |
dc.subject |
Genetic Diseases, Inborn |
en |
dc.subject |
Genetic Predisposition to Disease |
en |
dc.subject |
Genetic Testing |
en |
dc.subject |
Heterozygote |
en |
dc.subject |
Humans |
en |
dc.subject |
Professional-Patient Relations |
en |
dc.subject |
Self Concept |
en |
dc.subject |
Truth Disclosure |
en |
dc.title |
Why tell asymptomatic children of the risk of an adult-onset disease in the family but not test them for it? |
en |
dc.type |
Journal Article |
en |
dc.identifier.doi |
10.1136/jme.2005.015370 |
en |
pubs.issue |
11 |
en |
pubs.begin-page |
639 |
en |
pubs.volume |
32 |
en |
dc.rights.holder |
Copyright: BMJ Publishing Group Ltd and Institute of Medical Ethics |
en |
dc.identifier.pmid |
17074821 |
en |
pubs.end-page |
642 |
en |
dc.rights.accessrights |
http://purl.org/eprint/accessRights/RestrictedAccess |
en |
pubs.subtype |
Letter |
en |
pubs.elements-id |
112628 |
en |
pubs.org-id |
Medical and Health Sciences |
en |
pubs.org-id |
School of Medicine |
en |
pubs.org-id |
Psychological Medicine Dept |
en |
dc.identifier.pii |
32/11/639 |
en |
pubs.record-created-at-source-date |
2012-02-14 |
en |
pubs.dimensions-id |
17074821 |
en |