Abstract:
Makaton is an augmentative and alternative communication (AAC) system that is sometimes recommended to assist the development of language in children with Down syndrome. Research evidence about how parents of these children perceive this AAC system is currently limited. This results in clinicians having a limited body of evidence on which to draw on to ensure the appropriateness for recommending this system to families. It also compromises the application of family-centred practice if parents’ and family members’ perceptions of intervention are unknown or not considered. The current investigation used semi-structured interviews to collect data on the experiences and attitudes of 10 caregivers of children with Down syndrome in NZ who have used Makaton. In undertaking interviews concerning Makaton, caregivers also provided their perspective on speech-language service provision they were provided with. The results showed that Makaton was perceived to be of value in the communicative intervention of young children with Down syndrome. The findings also showed that perceived limitations of Makaton might be due to a lack of explanation about its intended purpose. Another finding was the concern raised by caregivers’ regarding the service provision of speech-language therapists. Most of the caregivers reported that funding for services was a major obstacle for the adequate speech-language therapy intervention. Moreover, family-centred service is not likely to happen with dissatisfaction of services. Implications and future research are discussed.
