dc.contributor.advisor |
Huggard, P |
en |
dc.contributor.advisor |
McCann, C |
en |
dc.contributor.author |
Buckley, Ann |
en |
dc.date.accessioned |
2015-08-12T23:19:35Z |
en |
dc.date.issued |
2015 |
en |
dc.identifier.citation |
2015 |
en |
dc.identifier.uri |
http://hdl.handle.net/2292/26690 |
en |
dc.description |
Full text is available to authenticated members of The University of Auckland only. |
en |
dc.description.abstract |
Brain injury has an impact on the whole family who are frequently called upon to provide care and support for their injured relative. The effect on families has been studied from many theoretical perspectives but the actual lived experiences of families has received less attention and there is little information from the families themselves on what is meaningful for them and how they actually recreate their lives. The aim of this thesis is to explore from the family perspective how to live meaningfully following a brain injury. This study used Interpretative Phenomenological Analysis (IPA) methodological approach, as suitable for exploring family experiences of the phenomenon of recreating a life following a brain injury. Semi-structured interviews were conducted with four families. Interpretation and analysis proceeded in an iterative pattern and demonstrated that life was difficult after an injury but it was however possible to live positively. It was clear that what was meaningful to each individual family was unique. From these individual accounts, four dominant themes were identified and the generalisability of the experiences became clear. The themes identified were; the difficulty families had in being heard and having their needs met through negotiating services, the centrality and importance of family, creating meaning after the event and reconnecting with the community. The intensity with which families feel a communication chasm between themselves and providers/funders is apparent and the reasons why this is so is, from the family perspective is examined and discussed. Families identified that it is essential that their requirements receive a flexible and creative response. Discussed also is how these families in both a practical and existential sense found ways to positively rebuild life. Presented, in their own words in the verbatim accounts, this gives a powerful and positive example of how to live successfully. Suggestions for ongoing practices for agencies involved with families are presented along with some ideas for future research. It was identified that those working with families should attend to individual contexts and communication. Further research needs to centre on provider communication, respite and what is meaningful in goal setting. |
en |
dc.publisher |
ResearchSpace@Auckland |
en |
dc.relation.ispartof |
Masters Thesis - University of Auckland |
en |
dc.relation.isreferencedby |
UoA99264799511502091 |
en |
dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. |
en |
dc.rights |
Restricted Item. Available to authenticated members of The University of Auckland. |
en |
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
en |
dc.rights.uri |
http://creativecommons.org/licenses/by-nc-sa/3.0/nz/ |
en |
dc.title |
Recreating Lives with Care: The Experience of Families after Brain Injury |
en |
dc.type |
Thesis |
en |
thesis.degree.discipline |
Health Sciences |
en |
thesis.degree.grantor |
The University of Auckland |
en |
thesis.degree.level |
Masters |
en |
dc.rights.holder |
Copyright: The Author |
en |
pubs.elements-id |
494693 |
en |
pubs.record-created-at-source-date |
2015-08-13 |
en |
dc.identifier.wikidata |
Q112908278 |
|