Abstract:
For the first time people who have haemophilia are facing the same aging issues as the general population due to longer life expectancy. This brings new and unique challenges for this group, and adds further complexity to their treatment, care, and support. The existing literature on this topic is dominated by a medical perspective that focuses on treatments and haematological management of haemophilia and common co-morbidities. Very little investigation into the wider effects of the challenges of growing older with haemophilia on an individual’s holistic wellbeing has occurred. Accordingly, this research investigates the wider psychosocial experiences of older men with haemophilia in New Zealand using an exploratory sequential design that included a literature review, focus group, and national questionnaire. This mixed-method study identifies the unique issues and challenges faced by older men with haemophilia in Aotearoa, New Zealand, and their perceptions of the support services available to them. The results indicate that there are substantial challenges for older people with haemophilia, some of which have been identified in previous research and some which are presented in this thesis for the first time. Results also show that older people with haemophilia in New Zealand have very effective supports and services available to them. This research provides a starting point for in-depth conversations about older people with haemophilia and offers recommendations that can ultimately improve and enhance the lives and wellbeing of older men with haemophilia in New Zealand.
