Improving the Quality of Informed Consent in Clinical Research with Information Technology

Show simple item record Taber, C en Warren, James en Day, Karen en
dc.contributor.editor Maeder, AJ en
dc.contributor.editor Ho, K en
dc.contributor.editor Warren, J en
dc.coverage.spatial Auckland, New Zealand en 2017-06-09T03:12:08Z en 2016-01 en
dc.identifier.citation Studies in Health Technology and Informatics, 231: 135-142. en
dc.identifier.isbn 978-1-61499-712-2 en
dc.identifier.issn 0926-9630 en
dc.identifier.uri en
dc.description.abstract The clinical research industry has yet to fully embrace information technology (IT) for informed consent purposes, even though it is used indispensably in our everyday lives and in other areas of clinical research and healthcare. This paper presents findings of a meta-narrative literature review to discuss the potential for IT to improve the quality of clinical research informed consent. The review reveals three main rationales for including IT in research consent. First, in the current context consent documents frequently fail to be effective decision aids for patients, and the lack of patient centricity in the process. Second, social media provides opportunities for patients to consult with a broader community during research consent to seek broader support, and potential to participate in creating a more patient centric process. Third, multimedia tools provide opportunities for improved patient education, engagement and decision making during research consent. IT offers opportunities to achieve more meaningful research consent, but more research is needed to create an evidence base, policies and economic analyses on the return on investment of using IT in the process. en
dc.description.uri en
dc.format.medium Print en
dc.publisher IOS Press en
dc.relation.ispartof Global Telehealth 2016 (GT2016). 5th International Conference on Global Telehealth en
dc.relation.ispartofseries Studies in Health Technology and Informatics en
dc.rights Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. Details obtained from en
dc.rights.uri en
dc.rights.uri en
dc.title Improving the Quality of Informed Consent in Clinical Research with Information Technology en
dc.type Conference Item en
dc.identifier.doi 10.3233/978-1-61499-712-2-135 en
pubs.begin-page 135 en
pubs.volume 231 en
dc.description.version VoR - Version of Record en
dc.identifier.pmid 27782025 en en
pubs.end-page 142 en
pubs.finish-date 2016-11-03 en
pubs.publication-status Published en
pubs.start-date 2016-10-31 en
dc.rights.accessrights en
pubs.subtype Proceedings en
pubs.elements-id 554921 en Medical and Health Sciences en Population Health en Health Systems en Science en School of Computer Science en
dc.identifier.eissn 1879-8365 en
pubs.record-created-at-source-date 2017-06-09 en
pubs.dimensions-id 27782025 en

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