dc.contributor.author |
Taber, C |
en |
dc.contributor.author |
Warren, James |
en |
dc.contributor.author |
Day, Karen |
en |
dc.contributor.editor |
Maeder, AJ |
en |
dc.contributor.editor |
Ho, K |
en |
dc.contributor.editor |
Warren, J |
en |
dc.coverage.spatial |
Auckland, New Zealand |
en |
dc.date.accessioned |
2017-06-09T03:12:08Z |
en |
dc.date.issued |
2016-01 |
en |
dc.identifier.citation |
Studies in Health Technology and Informatics, 231: 135-142. |
en |
dc.identifier.isbn |
978-1-61499-712-2 |
en |
dc.identifier.issn |
0926-9630 |
en |
dc.identifier.uri |
http://hdl.handle.net/2292/33390 |
en |
dc.description.abstract |
The clinical research industry has yet to fully embrace information technology (IT) for informed consent purposes, even though it is used indispensably in our everyday lives and in other areas of clinical research and healthcare. This paper presents findings of a meta-narrative literature review to discuss the potential for IT to improve the quality of clinical research informed consent. The review reveals three main rationales for including IT in research consent. First, in the current context consent documents frequently fail to be effective decision aids for patients, and the lack of patient centricity in the process. Second, social media provides opportunities for patients to consult with a broader community during research consent to seek broader support, and potential to participate in creating a more patient centric process. Third, multimedia tools provide opportunities for improved patient education, engagement and decision making during research consent. IT offers opportunities to achieve more meaningful research consent, but more research is needed to create an evidence base, policies and economic analyses on the return on investment of using IT in the process. |
en |
dc.description.uri |
http://librarysearch.auckland.ac.nz/UOA2_A:Combined_Local:uoa_alma21265415680002091 |
en |
dc.format.medium |
Print |
en |
dc.publisher |
IOS Press |
en |
dc.relation.ispartof |
Global Telehealth 2016 (GT2016). 5th International Conference on Global Telehealth |
en |
dc.relation.ispartofseries |
Studies in Health Technology and Informatics |
en |
dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. Details obtained from
http://sherpa.ac.uk/romeo/issn/0926-9630/
http://www.iospress.nl/service/authors/open-library-ios-press-open-access-option/ |
en |
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
en |
dc.rights.uri |
https://creativecommons.org/licenses/by-nc/4.0/ |
en |
dc.title |
Improving the Quality of Informed Consent in Clinical Research with Information Technology |
en |
dc.type |
Conference Item |
en |
dc.identifier.doi |
10.3233/978-1-61499-712-2-135 |
en |
pubs.begin-page |
135 |
en |
pubs.volume |
231 |
en |
dc.description.version |
VoR - Version of Record |
en |
dc.identifier.pmid |
27782025 |
en |
pubs.author-url |
https://books.google.co.nz/books?id=jRKhDQAAQBAJ |
en |
pubs.end-page |
142 |
en |
pubs.finish-date |
2016-11-03 |
en |
pubs.publication-status |
Published |
en |
pubs.start-date |
2016-10-31 |
en |
dc.rights.accessrights |
http://purl.org/eprint/accessRights/OpenAccess |
en |
pubs.subtype |
Proceedings |
en |
pubs.elements-id |
554921 |
en |
pubs.org-id |
Medical and Health Sciences |
en |
pubs.org-id |
Population Health |
en |
pubs.org-id |
Health Systems |
en |
pubs.org-id |
Science |
en |
pubs.org-id |
School of Computer Science |
en |
dc.identifier.eissn |
1879-8365 |
en |
pubs.record-created-at-source-date |
2017-06-09 |
en |
pubs.dimensions-id |
27782025 |
en |