dc.contributor.advisor |
Johnson, M |
en |
dc.contributor.advisor |
Malpas, P |
en |
dc.contributor.author |
Hamilton, Golda |
en |
dc.date.accessioned |
2018-06-07T21:26:16Z |
en |
dc.date.issued |
2018 |
en |
dc.identifier.uri |
http://hdl.handle.net/2292/37230 |
en |
dc.description |
Full text is available to authenticated members of The University of Auckland only. |
en |
dc.description.abstract |
Prior research indicated that receiving end-of-life care was a prevalent and intense source of distress but the full spectrum of concerns had not been captured by existing terms, theories, or psychometric measures. This thesis proposed the term ‘care-recipient burden’ and aimed to develop and test the psychometric properties of a Care-Recipient Burden Aversion Scale (CRBAS) and evaluate the responses of members of the New Zealand public. The CRBAS’s development involved a comprehensive review of the literature, collaborative discussions, and a small pilot study. The CRBAS, along with sociodemographic questions, and three vignettes describing the impact of end-of-life care on the care-recipient, their family, and society, were administered to 203 participants. 187 completed all sections. 124 participants completed a follow-up survey with the CRBAS after a three week interval. The CRBAS was evaluated for internal reliability, test-retest reliability, content validity, construct validity, and convergent validity. Potential sociodemographic predictors were also tested. Results indicated varied levels of aversion to different aspects of care-recipient burden. Number of children, number of siblings, relationship status, and the diagnosis of a condition expected to reduce the capacity to care for oneself emerged as potential predictors of carerecipient burden aversion. The CRBAS demonstrated good validity and reliability but the proposed three-factor structure (of concerns relating to the self, family, and society) was not supported by factor analyses. However, convergence between CRBAS and vignette responses supported deconstructing care-recipient burden based on the bearer of burden. Thematic analysis of qualitative comments recommended the CRBAS incorporate four additional themes. The measure was modified based on this study’s findings and a final version was proposed. This study indicated that members of the public are averse to the care-recipient role and associate a variety of concerns with the receipt of end-of-life care. More importantly, this study operationalised the multidimensional burden on care-recipients. Promising results suggest that this study’s conceptualisation and measure of care-recipient burden aversion may facilitate necessary progress in relevant research and clinical practice. |
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dc.publisher |
ResearchSpace@Auckland |
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dc.relation.ispartof |
Masters Thesis - University of Auckland |
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dc.relation.isreferencedby |
UoA99265067208302091 |
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dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. |
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dc.rights |
Restricted Item. Available to authenticated members of The University of Auckland. |
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dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
en |
dc.rights.uri |
http://creativecommons.org/licenses/by-nc-sa/3.0/nz/ |
en |
dc.title |
The Public's Aversion to End-of-Life Care-Recipient Burden: The Findings and Psychometric Properties of a New Measurement Instrument |
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dc.type |
Thesis |
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thesis.degree.discipline |
Health Psychology |
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thesis.degree.grantor |
The University of Auckland |
en |
thesis.degree.level |
Masters |
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dc.rights.holder |
Copyright: The author |
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pubs.elements-id |
744166 |
en |
pubs.record-created-at-source-date |
2018-06-08 |
en |
dc.identifier.wikidata |
Q112936529 |
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