A Standards-based Approach to Development of Clinical Registries - Initial Lessons Learnt from the Gestational Diabetes Registry

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dc.contributor.author Atalag, Koray en
dc.contributor.author Zivaljevic, Aleksandar en
dc.contributor.author Eagleton, C en
dc.contributor.author Pickering, K en
dc.coverage.spatial Auckland, New Zealand en
dc.date.accessioned 2018-10-10T01:09:43Z en
dc.date.issued 2014-11 en
dc.identifier.uri http://hdl.handle.net/2292/40274 en
dc.description.abstract Gestational diabetes has implications for both mother and child with risk of complications during pregnancy, and type 2 diabetes later in life. This paper presents the initial lessons learned from the development of a clinical registry. The aims of the Registry are: 1) 100% successful diabetes screening within 3 months of delivery; 2) Annual type 2 diabetes screening; 3) Early warning in subsequent pregnancies. We have employed the openEHR standard which underpins our national interoperability reference architecture to represent the dataset and also to build the web-based registry system. Use of this rigorous methodology to tackle health information is expected to ensure semantic consistency of Registry data and maximise interoperability with other Sector projects. The development work has been facilitated by the ability to transform the dataset automatically into software code – ensuring clinical requirements accurately translated into technical terms. Dataset has been finalised, registry system has been developed and deployed for pilot implementation. Data entry is underway for participants after consenting. This registry is expected to increase the screening of women leading to earlier detection of diabetes. It should provide a valuable picture of the condition and is intended for extension and wider roll-out after evaluation en
dc.description.uri http://www.hinz.org.nz/events/EventDetails.aspx?id=506367 en
dc.relation.ispartof 13th Annual Health Informatics New Zealand (HINZ) Conference en
dc.rights Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. en
dc.rights.uri https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm en
dc.title A Standards-based Approach to Development of Clinical Registries - Initial Lessons Learnt from the Gestational Diabetes Registry en
dc.type Conference Item en
dc.identifier.doi 10.13140/2.1.2861.7283 en
dc.rights.holder Copyright: The author en
pubs.finish-date 2014-11-13 en
pubs.start-date 2014-11-11 en
dc.rights.accessrights http://purl.org/eprint/accessRights/RestrictedAccess en
pubs.subtype Conference Paper en
pubs.elements-id 476971 en
pubs.org-id Bioengineering Institute en
pubs.record-created-at-source-date 2015-02-27 en

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