What is the role of community at the end of life for people dying in advanced age? A qualitative study with bereaved family carers.

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dc.contributor.author Gott, Caryl en
dc.contributor.author Wiles, Janine en
dc.contributor.author Moeke-Maxwell, Tess en
dc.contributor.author Black, Stella en
dc.contributor.author Williams, Lisa en
dc.contributor.author Kerse, Ngaire en
dc.contributor.author Trussardi, Gabriella en
dc.date.accessioned 2018-10-24T00:39:16Z en
dc.date.issued 2018-01 en
dc.identifier.citation Palliative Medicine 32(1):268-275 Jan 2018 en
dc.identifier.issn 0269-2163 en
dc.identifier.uri http://hdl.handle.net/2292/43368 en
dc.description.abstract BACKGROUND:New public health approaches to palliative care prioritise the role of community at end of life. However, little is known about community support for the increasing numbers of people dying in advanced age. AIM:To explore the role of community at end of life for people dying in advanced age from the perspective of their bereaved family caregivers. DESIGN:A constructionist framework underpinned a qualitative research design. Data were analysed using critical thematic analysis. SETTING/PARTICIPANTS:A total of 58 participants (19 Māori and 39 non-Māori) who cared for 52 family members who died at >80 years of age participated in semi-structured interviews. RESULTS:A reduction in the social networks and community engagement of the older person was identified in the end-of-life period. Numerous barriers to community engagement in advanced age were identified, including poor health (notably dementia), moving into an aged care facility and lack of access due to transport difficulties. An active withdrawal from community at end of life was also noted. Carers felt limited support from community currently, but identified that communities could play a particular role in reducing social isolation and loneliness among people of advanced age prior to death. CONCLUSION:Our study provides strong support for public health approaches to palliative care that advocate building social networks around people who are dying and their family carers. However, it also indicates that strategies to do so must be flexible enough to be responsive to the unique end-of-life circumstances of people in advanced age. en
dc.format.medium Print-Electronic en
dc.language eng en
dc.relation.ispartofseries Palliative medicine en
dc.rights Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. en
dc.rights.uri https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm en
dc.rights.uri https://uk.sagepub.com/en-gb/eur/posting-to-an-institutional-repository en
dc.subject Humans en
dc.subject Bereavement en
dc.subject Family en
dc.subject Professional Role en
dc.subject Qualitative Research en
dc.subject Social Support en
dc.subject Adult en
dc.subject Aged en
dc.subject Aged, 80 and over en
dc.subject Middle Aged en
dc.subject Caregivers en
dc.subject Population Groups en
dc.subject Community Health Services en
dc.subject Health Services, Indigenous en
dc.subject Female en
dc.subject Male en
dc.title What is the role of community at the end of life for people dying in advanced age? A qualitative study with bereaved family carers. en
dc.type Journal Article en
dc.identifier.doi 10.1177/0269216317735248 en
pubs.issue 1 en
pubs.begin-page 268 en
pubs.volume 32 en
dc.rights.holder Copyright: The authors en
dc.identifier.pmid 29130405 en
pubs.end-page 275 en
pubs.publication-status Published en
dc.rights.accessrights http://purl.org/eprint/accessRights/OpenAccess en
pubs.subtype Research Support, Non-U.S. Gov't en
pubs.subtype Journal Article en
pubs.elements-id 713703 en
pubs.org-id Medical and Health Sciences en
pubs.org-id Nursing en
pubs.org-id Population Health en
pubs.org-id Social & Community Health en
dc.identifier.eissn 1477-030X en
pubs.record-created-at-source-date 2017-11-14 en
pubs.dimensions-id 29130405 en

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