dc.contributor.author |
Gott, Caryl |
en |
dc.contributor.author |
Wiles, Janine |
en |
dc.contributor.author |
Moeke-Maxwell, Tess |
en |
dc.contributor.author |
Black, Stella |
en |
dc.contributor.author |
Williams, Lisa |
en |
dc.contributor.author |
Kerse, Ngaire |
en |
dc.contributor.author |
Trussardi, Gabriella |
en |
dc.date.accessioned |
2018-10-24T00:39:16Z |
en |
dc.date.issued |
2018-01 |
en |
dc.identifier.citation |
Palliative Medicine 32(1):268-275 Jan 2018 |
en |
dc.identifier.issn |
0269-2163 |
en |
dc.identifier.uri |
http://hdl.handle.net/2292/43368 |
en |
dc.description.abstract |
BACKGROUND:New public health approaches to palliative care prioritise the role of community at end of life. However, little is known about community support for the increasing numbers of people dying in advanced age. AIM:To explore the role of community at end of life for people dying in advanced age from the perspective of their bereaved family caregivers. DESIGN:A constructionist framework underpinned a qualitative research design. Data were analysed using critical thematic analysis. SETTING/PARTICIPANTS:A total of 58 participants (19 Māori and 39 non-Māori) who cared for 52 family members who died at >80 years of age participated in semi-structured interviews. RESULTS:A reduction in the social networks and community engagement of the older person was identified in the end-of-life period. Numerous barriers to community engagement in advanced age were identified, including poor health (notably dementia), moving into an aged care facility and lack of access due to transport difficulties. An active withdrawal from community at end of life was also noted. Carers felt limited support from community currently, but identified that communities could play a particular role in reducing social isolation and loneliness among people of advanced age prior to death. CONCLUSION:Our study provides strong support for public health approaches to palliative care that advocate building social networks around people who are dying and their family carers. However, it also indicates that strategies to do so must be flexible enough to be responsive to the unique end-of-life circumstances of people in advanced age. |
en |
dc.format.medium |
Print-Electronic |
en |
dc.language |
eng |
en |
dc.relation.ispartofseries |
Palliative medicine |
en |
dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. |
en |
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
en |
dc.rights.uri |
https://uk.sagepub.com/en-gb/eur/posting-to-an-institutional-repository |
en |
dc.subject |
Humans |
en |
dc.subject |
Bereavement |
en |
dc.subject |
Family |
en |
dc.subject |
Professional Role |
en |
dc.subject |
Qualitative Research |
en |
dc.subject |
Social Support |
en |
dc.subject |
Adult |
en |
dc.subject |
Aged |
en |
dc.subject |
Aged, 80 and over |
en |
dc.subject |
Middle Aged |
en |
dc.subject |
Caregivers |
en |
dc.subject |
Population Groups |
en |
dc.subject |
Community Health Services |
en |
dc.subject |
Health Services, Indigenous |
en |
dc.subject |
Female |
en |
dc.subject |
Male |
en |
dc.title |
What is the role of community at the end of life for people dying in advanced age? A qualitative study with bereaved family carers. |
en |
dc.type |
Journal Article |
en |
dc.identifier.doi |
10.1177/0269216317735248 |
en |
pubs.issue |
1 |
en |
pubs.begin-page |
268 |
en |
pubs.volume |
32 |
en |
dc.rights.holder |
Copyright: The authors |
en |
dc.identifier.pmid |
29130405 |
en |
pubs.end-page |
275 |
en |
pubs.publication-status |
Published |
en |
dc.rights.accessrights |
http://purl.org/eprint/accessRights/OpenAccess |
en |
pubs.subtype |
Research Support, Non-U.S. Gov't |
en |
pubs.subtype |
Journal Article |
en |
pubs.elements-id |
713703 |
en |
pubs.org-id |
Medical and Health Sciences |
en |
pubs.org-id |
Nursing |
en |
pubs.org-id |
Population Health |
en |
pubs.org-id |
Social & Community Health |
en |
dc.identifier.eissn |
1477-030X |
en |
pubs.record-created-at-source-date |
2017-11-14 |
en |
pubs.dimensions-id |
29130405 |
en |