Complex contradictions in conceptualisations of 'dignity' in palliative care.

Show simple item record Williams, Lisa en Trussardi, Gabriella en Black, Stella en Moeke-Maxwell, Tess en Frey, Rosemary en Robinson, Jacqualine en Gott, Caryl en 2018-10-24T22:00:24Z en 2018-01 en
dc.identifier.issn 1357-6321 en
dc.identifier.uri en
dc.description.abstract Internationally, increasing attention is being paid to understanding patient experiences of health care. Within palliative care, the Views of Informal Carers - Evaluation of Services (VOICES) questionnaire is commonly used for this purpose. Among its objectives is to ask family members if their relatives were treated with dignity at the end of life. This is regarded as useful for understanding the quality of the health care received.To highlight the differences between family members' reports of dignity in the care provided to their relatives at the end of life, as reported in the VOICES questionnaire, and their narratives about the care their relatives received.A total of 21 cognitive interviews were conducted during a New Zealand pilot of the VOICES questionnaire.Discrepancies between ratings of dignity and the lived experience of care suggest that lay understandings of dignity may not be congruent with that of health care providers.Bereaved family members' self-reports of dignity in end-of-life care captured using survey methods alone are inadequate to understand the complex ways in which individuals conceptualise and experience dignity within a health care context. The authors advocate consideration of multiple, complementary approaches to gathering consumer experiences of end-of-life care, as well as research which enables service users to interrogate what dignity in care means in an end-of-life context. en
dc.format.medium Print en
dc.language eng en
dc.relation.ispartofseries International journal of palliative nursing en
dc.rights Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. en
dc.rights This document is the Accepted Manuscript version of a Published Work that appeared in final form in International journal of palliative nursing, copyright © MA Healthcare, after peer review and technical editing by the publisher. To access the final edited and published work see en
dc.rights.uri en
dc.rights.uri en
dc.subject Humans en
dc.subject Palliative Care en
dc.subject Terminal Care en
dc.subject Pilot Projects en
dc.subject Attitude to Health en
dc.subject Bereavement en
dc.subject Family en
dc.subject Qualitative Research en
dc.subject Personhood en
dc.subject Adult en
dc.subject Aged en
dc.subject Aged, 80 and over en
dc.subject Middle Aged en
dc.subject New Zealand en
dc.subject Female en
dc.subject Male en
dc.subject Surveys and Questionnaires en
dc.title Complex contradictions in conceptualisations of 'dignity' in palliative care. en
dc.type Journal Article en
dc.identifier.doi 10.12968/ijpn.2018.24.1.12 en
pubs.issue 1 en
pubs.begin-page 12 en
pubs.volume 24 en
dc.rights.holder Copyright: MA Healthcare Ltd en
dc.identifier.pmid 29368556 en
pubs.end-page 21 en
pubs.publication-status Published en
dc.rights.accessrights en
pubs.subtype Journal Article en
pubs.elements-id 722725 en Medical and Health Sciences en Nursing en
pubs.record-created-at-source-date 2018-01-26 en
pubs.dimensions-id 29368556 en

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