dc.contributor.author |
Williams, Lisa |
en |
dc.contributor.author |
Trussardi, Gabriella |
en |
dc.contributor.author |
Black, Stella |
en |
dc.contributor.author |
Moeke-Maxwell, Tess |
en |
dc.contributor.author |
Frey, Rosemary |
en |
dc.contributor.author |
Robinson, Jacqualine |
en |
dc.contributor.author |
Gott, Caryl |
en |
dc.date.accessioned |
2018-10-24T22:00:24Z |
en |
dc.date.issued |
2018-01 |
en |
dc.identifier.issn |
1357-6321 |
en |
dc.identifier.uri |
http://hdl.handle.net/2292/43397 |
en |
dc.description.abstract |
Internationally, increasing attention is being paid to understanding patient experiences of health care. Within palliative care, the Views of Informal Carers - Evaluation of Services (VOICES) questionnaire is commonly used for this purpose. Among its objectives is to ask family members if their relatives were treated with dignity at the end of life. This is regarded as useful for understanding the quality of the health care received.To highlight the differences between family members' reports of dignity in the care provided to their relatives at the end of life, as reported in the VOICES questionnaire, and their narratives about the care their relatives received.A total of 21 cognitive interviews were conducted during a New Zealand pilot of the VOICES questionnaire.Discrepancies between ratings of dignity and the lived experience of care suggest that lay understandings of dignity may not be congruent with that of health care providers.Bereaved family members' self-reports of dignity in end-of-life care captured using survey methods alone are inadequate to understand the complex ways in which individuals conceptualise and experience dignity within a health care context. The authors advocate consideration of multiple, complementary approaches to gathering consumer experiences of end-of-life care, as well as research which enables service users to interrogate what dignity in care means in an end-of-life context. |
en |
dc.format.medium |
Print |
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dc.language |
eng |
en |
dc.relation.ispartofseries |
International journal of palliative nursing |
en |
dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. |
en |
dc.rights |
This document is the Accepted Manuscript version of a Published Work that appeared in final form in International journal of palliative nursing, copyright © MA Healthcare, after peer review and technical editing by the publisher. To access the final edited and published work see http://dx.doi.org/10.12968/ijpn.2018.24.1.12 |
en |
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
en |
dc.rights.uri |
https://www.magonlinelibrary.com/page/authors/sharing |
en |
dc.subject |
Humans |
en |
dc.subject |
Palliative Care |
en |
dc.subject |
Terminal Care |
en |
dc.subject |
Pilot Projects |
en |
dc.subject |
Attitude to Health |
en |
dc.subject |
Bereavement |
en |
dc.subject |
Family |
en |
dc.subject |
Qualitative Research |
en |
dc.subject |
Personhood |
en |
dc.subject |
Adult |
en |
dc.subject |
Aged |
en |
dc.subject |
Aged, 80 and over |
en |
dc.subject |
Middle Aged |
en |
dc.subject |
New Zealand |
en |
dc.subject |
Female |
en |
dc.subject |
Male |
en |
dc.subject |
Surveys and Questionnaires |
en |
dc.title |
Complex contradictions in conceptualisations of 'dignity' in palliative care. |
en |
dc.type |
Journal Article |
en |
dc.identifier.doi |
10.12968/ijpn.2018.24.1.12 |
en |
pubs.issue |
1 |
en |
pubs.begin-page |
12 |
en |
pubs.volume |
24 |
en |
dc.rights.holder |
Copyright: MA Healthcare Ltd |
en |
dc.identifier.pmid |
29368556 |
en |
pubs.end-page |
21 |
en |
pubs.publication-status |
Published |
en |
dc.rights.accessrights |
http://purl.org/eprint/accessRights/OpenAccess |
en |
pubs.subtype |
Journal Article |
en |
pubs.elements-id |
722725 |
en |
pubs.org-id |
Medical and Health Sciences |
en |
pubs.org-id |
Nursing |
en |
pubs.record-created-at-source-date |
2018-01-26 |
en |
pubs.dimensions-id |
29368556 |
en |