dc.contributor.author |
Tai, V |
en |
dc.contributor.author |
Lindsay, K |
en |
dc.contributor.author |
Sims, JL |
en |
dc.contributor.author |
McQueen, Fiona |
en |
dc.date.accessioned |
2018-11-13T02:06:35Z |
en |
dc.date.issued |
2017-09-22 |
en |
dc.identifier.citation |
New Zealand Medical Journal 130(1462):27-36 22 Sep 2017 |
en |
dc.identifier.issn |
0028-8446 |
en |
dc.identifier.uri |
http://hdl.handle.net/2292/44164 |
en |
dc.description.abstract |
Behcet's syndrome is a rare chronic multisystemic vasculitis of unknown aetiology, is unpredictable and can cause life-threatening complications. This qualitative study aims to explore the experiences of patients living with Behcet's syndrome in New Zealand.Eight English-speaking patients participated in in-depth semi-structured interviews about their experiences of living with Behcet's syndrome. Interviews were recorded and transcribed. Data were analysed using a general inductive thematic approach.Five themes related to the experience of Behcet's syndrome emerged from the interviews: diagnosis (diagnostic challenge and closure), impact of disease (pain, fatigue, reduced vision, fear and uncertainty), loneliness and isolation (lack of support and information, invisible illness), acquiring resilience (coping, gaining sense of control, support group) and ongoing interactions with health system (specialist care, primary care, need for multidisciplinary care, doctor-patient relationship).Behcet's syndrome patients experience difficulties in obtaining a timely and correct diagnosis and contend numerous physical and emotional challenges, often experiencing loneliness and isolation. Establishing trusting doctor-patient relationships, allowing timely access to specialist care and recruiting psychosocial supports will help patients better cope with their illness. Diagnosis and management of Behcet's syndrome requires close collaboration and communication among specialists and general practitioners and improved education on Behcet's syndrome. |
en |
dc.format.medium |
Electronic |
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dc.language |
eng |
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dc.publisher |
New Zealand Medical Association |
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dc.relation.ispartofseries |
New Zealand Medical Journal |
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dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. |
en |
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
en |
dc.rights.uri |
http://www.nzma.org.nz/journal/contribute |
en |
dc.subject |
Humans |
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dc.subject |
Behcet Syndrome |
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dc.subject |
Pain |
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dc.subject |
Vision, Low |
en |
dc.subject |
Fatigue |
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dc.subject |
Adaptation, Psychological |
en |
dc.subject |
Interdisciplinary Communication |
en |
dc.subject |
Social Isolation |
en |
dc.subject |
Fear |
en |
dc.subject |
Physician-Patient Relations |
en |
dc.subject |
Qualitative Research |
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dc.subject |
Adult |
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dc.subject |
Aged |
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dc.subject |
Middle Aged |
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dc.subject |
New Zealand |
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dc.subject |
Female |
en |
dc.subject |
Male |
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dc.subject |
Interviews as Topic |
en |
dc.subject |
Young Adult |
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dc.title |
Qualitative study: the experience and impact of living with Behcet's syndrome |
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dc.type |
Journal Article |
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pubs.issue |
1462 |
en |
pubs.begin-page |
27 |
en |
pubs.volume |
130 |
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dc.rights.holder |
Copyright: New Zealand Medical Association |
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dc.identifier.pmid |
28934765 |
en |
pubs.author-url |
http://www.nzma.org.nz/journal/read-the-journal/all-issues/2010-2019/2017/vol-130-no-1462-22-september-2017/7359 |
en |
pubs.end-page |
36 |
en |
pubs.publication-status |
Published |
en |
dc.rights.accessrights |
http://purl.org/eprint/accessRights/OpenAccess |
en |
pubs.subtype |
Article |
en |
pubs.elements-id |
679315 |
en |
dc.identifier.eissn |
1175-8716 |
en |
pubs.record-created-at-source-date |
2019-05-10 |
en |
pubs.dimensions-id |
28934765 |
en |