End of life care preferences among people of advanced age: LiLACS NZ.

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dc.contributor.author Gott, Caryl en
dc.contributor.author Frey, Rosemary en
dc.contributor.author Wiles, Janine en
dc.contributor.author Rolleston, Anna en
dc.contributor.author Teh, Ruth en
dc.contributor.author Moeke-Maxwell, Tess en
dc.contributor.author Kerse, Ngaire en
dc.date.accessioned 2018-11-26T01:05:58Z en
dc.date.issued 2017-12-19 en
dc.identifier.citation BMC Palliative Care 16:10 pages 19 Dec 2017 en
dc.identifier.issn 1472-684X en
dc.identifier.uri http://hdl.handle.net/2292/44583 en
dc.description.abstract Understanding end of life preferences amongst the oldest old is crucial to informing appropriate palliative and end of life care internationally. However, little has been reported in the academic literature about the end of life preferences of people in advanced age, particularly the preferences of indigenous older people, including New Zealand Māori.Data on end of life preferences were gathered from 147 Māori (aged >80 years) and 291 non- Māori aged (>85 years), during three waves of Te Puawaitangi O Nga Tapuwae Kia Ora Tonu, Life and Living in Advanced Age (LiLACs NZ). An interviewer-led questionnaire using standardised tools and including Māori specific subsections was used.The top priority for both Māori and non-Māori participants at end of life was 'not being a burden to my family'. Interestingly, a home death was not a high priority for either group. End of life preferences differed by gender, however these differences were culturally contingent. More female Māori participants wanted spiritual practices at end of life than male Māori participants. More male non-Māori participants wanted to be resuscitated than female non- Māori participants.That a home death was not in the top three end of life priorities for our participants is not consistent with palliative care policy in most developed countries where place of death, and particularly home death, is a central concern. Conversely our participants' top concern - namely not being a burden - has received little research or policy attention. Our results also indicate a need to pay attention to diversity in end of life preferences amongst people of advanced age, as well as the socio-cultural context within which preferences are formulated. en
dc.format.medium Electronic en
dc.language eng en
dc.relation.ispartofseries BMC palliative care en
dc.rights Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. en
dc.rights.uri https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm en
dc.rights.uri https://creativecommons.org/licenses/by/4.0/ en
dc.subject Humans en
dc.subject Terminal Care en
dc.subject Chi-Square Distribution en
dc.subject Cohort Studies en
dc.subject Aging en
dc.subject Aged, 80 and over en
dc.subject Population Groups en
dc.subject New Zealand en
dc.subject Female en
dc.subject Male en
dc.subject Patient Preference en
dc.subject Surveys and Questionnaires en
dc.title End of life care preferences among people of advanced age: LiLACS NZ. en
dc.type Journal Article en
dc.identifier.doi 10.1186/s12904-017-0258-0 en
pubs.issue 1 en
pubs.begin-page 76 en
pubs.volume 16 en
dc.rights.holder Copyright: The authors en
dc.identifier.pmid 29258480 en
pubs.publication-status Published en
dc.rights.accessrights http://purl.org/eprint/accessRights/OpenAccess en
pubs.subtype research-article en
pubs.subtype Journal Article en
pubs.elements-id 719552 en
pubs.org-id Medical and Health Sciences en
pubs.org-id Nursing en
pubs.org-id Population Health en
pubs.org-id Gen.Practice& Primary Hlthcare en
pubs.org-id Social & Community Health en
dc.identifier.eissn 1472-684X en
pubs.record-created-at-source-date 2017-12-21 en
pubs.dimensions-id 29258480 en

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