Why people donate their brain to science: a systematic review.

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dc.contributor.author Lin, Meng-Jiun en
dc.contributor.author Jowsey, Tanisha en
dc.contributor.author Curtis, Maurice en
dc.date.accessioned 2019-11-25T01:02:57Z en
dc.date.issued 2019-12 en
dc.identifier.citation Cell and tissue banking 20(4):447-466 Dec 2019 en
dc.identifier.issn 1389-9333 en
dc.identifier.uri http://hdl.handle.net/2292/49135 en
dc.description.abstract The acquisition of brain tissue for research purposes is an important endeavour in research on ageing, pathological diagnosis, and the advancement of treatment of neurological or neurodegenerative diseases. While some tissue samples can be obtained from a living patient, the procurement of a whole brain requires the donation from people after their death. In order to promote positive attitudes towards brain donation, it is essential to understand why people do or do not donate their brain to medical research. In 2018 we undertook a systematic review of the international literature concerning people's attitudes, motivations, and feelings about brain donation. Five electronic databases were searched: Scopus, PsycINFO, Embase, Medline, and Google Scholar. Search terms included: ("brain donor*" OR "brain donation" OR "brain banking" OR "banking on brain") AND (attitude* OR motivation* OR decision*") AND (LIMIT-TO "human") AND (LIMIT-TO (LANGUAGE, "English")). Articles were analysed using the Framework for Assessing Qualitative Evaluations and a meta-ethnographic approach. Fourteen articles were included for review. The findings suggest four universal factors informing a person's decision to donate their brain: (1) contextual knowledge, (2) conceptual understandings, (3) family/friends matter, and (4) personal experience, time and process. The findings also indicate that the way healthcare professionals present themselves can influence people's feelings and attitudes towards brain donation. Healthcare and research professionals who are involved in brain donation processes must be mindful of the complex and multiple factors that influence donation outcomes. Effective and sensitive communication with potential donors and their family/friends is paramount. en
dc.format.medium Print-Electronic en
dc.language eng en
dc.relation.ispartofseries Cell and tissue banking en
dc.rights Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. en
dc.rights.uri https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm en
dc.rights.uri https://creativecommons.org/licenses/by/4.0/ en
dc.subject Brain en
dc.subject Humans en
dc.subject Attitude en
dc.subject Emotions en
dc.subject Motivation en
dc.subject Decision Making en
dc.subject Biomedical Research en
dc.subject Tissue Donors en
dc.subject Tissue and Organ Procurement en
dc.title Why people donate their brain to science: a systematic review. en
dc.type Journal Article en
dc.identifier.doi 10.1007/s10561-019-09786-3 en
pubs.issue 4 en
pubs.begin-page 447 en
pubs.volume 20 en
dc.rights.holder Copyright: The authors en
pubs.end-page 466 en
pubs.publication-status Published en
dc.rights.accessrights http://purl.org/eprint/accessRights/OpenAccess en
pubs.subtype Systematic Review en
pubs.subtype review-article en
pubs.subtype Journal Article en
pubs.elements-id 783313 en
pubs.org-id Medical and Health Sciences en
pubs.org-id Medical Sciences en
pubs.org-id Anatomy and Medical Imaging en
pubs.org-id School of Medicine en
pubs.org-id Anaesthesiology en
pubs.org-id Cent Medical & Hlth Sci Educat en
dc.identifier.eissn 1573-6814 en
pubs.record-created-at-source-date 2019-09-21 en
pubs.dimensions-id 31538265 en

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