Bereaved Families' Perspectives of End-of-Life Care. Towards a Bicultural Whare Tapa Whā Older person's Palliative Care Model.

Show simple item record Moeke-Maxwell, Tess en Collier, Aileen en Wiles, Janine en Williams, Lisa en Black, Stella en Gott, Caryl en 2020-09-21T00:41:15Z en 2020-09-21T00:41:15Z en 2020-06 en
dc.identifier.issn 0169-3816 en
dc.identifier.uri en
dc.description.abstract The views of family carers who provide end of life care to people of advanced age are not commonly known. We conducted a bicultural study with bereaved New Zealand Māori (indigenous) and non-indigenous family carers who, on behalf of their older family member, reflected on the end of life circumstances and formal and informal care experienced by the older person. Semi-structured interviews were undertaken with 58 people (19 Māori and 39 non-Māori), who cared for 52 family members who died aged over 80 years. A Kaupapa Māori thematic analysis of family/whānau perspectives identified examples of good holistic care as well as barriers to good care. These are presented in a proposed Whare Tapa Whā Older Person's Palliative Care model. Good health care was regarded by participants as that which was profoundly relationship-oriented and upheld the older person's mana (authority, status, spiritual power) across four critical health domains: Whānau (social/family), Hinengaro (emotional/mental), Wairua (spiritual) and Tinana (physical) health domains. However, poor health care on one level impacted on all four domains affecting (reducing) mana (status). The "indigenous" model was applicable to both indigenous and non-indigenous experiences of end of life care for those in advanced age. Thus, Indigenous perspectives could potentially guide and inform end of life care for all. en
dc.format.medium Print en
dc.language eng en
dc.relation.ispartofseries Journal of cross-cultural gerontology en
dc.rights Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. en
dc.rights.uri en
dc.subject Humans en
dc.subject Holistic Health en
dc.subject Palliative Care en
dc.subject Terminal Care en
dc.subject Bereavement en
dc.subject Qualitative Research en
dc.subject Caregivers en
dc.subject Oceanic Ancestry Group en
dc.subject New Zealand en
dc.subject Female en
dc.subject Male en
dc.subject Culturally Competent Care en
dc.title Bereaved Families' Perspectives of End-of-Life Care. Towards a Bicultural Whare Tapa Whā Older person's Palliative Care Model. en
dc.type Journal Article en
dc.identifier.doi 10.1007/s10823-020-09397-6 en
pubs.issue 2 en
pubs.begin-page 177 en
pubs.volume 35 en
dc.rights.holder Copyright: The author en
pubs.end-page 193 en
pubs.publication-status Published en
dc.rights.accessrights en
pubs.subtype Journal Article en
pubs.elements-id 796100 en Medical and Health Sciences en Nursing en Population Health en Social & Community Health en
dc.identifier.eissn 1573-0719 en
pubs.record-created-at-source-date 2020-02-21 en
pubs.dimensions-id 32076928 en

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