Stigma and the in(visible) perspectives and expectations of home oxygen therapy among people with chronic breathlessness syndrome: A qualitative study.

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dc.contributor.author Breaden, Katrina en
dc.contributor.author Collier, Aileen en
dc.contributor.author Litster, Caroline en
dc.contributor.author Allcroft, Peter en
dc.contributor.author Currow, David C en
dc.contributor.author Phillips, Jane L en
dc.date.accessioned 2020-09-28T23:25:54Z en
dc.date.available 2020-09-28T23:25:54Z en
dc.date.issued 2019-01 en
dc.identifier.citation Palliative medicine 33(1):82-90 Jan 2019 en
dc.identifier.issn 0269-2163 en
dc.identifier.uri http://hdl.handle.net/2292/53130 en
dc.description.abstract Background: Chronic breathlessness syndrome in the context of advancing disease is distressing for all concerned. Oxygen is commonly prescribed in this setting; however, little is known about the perspectives of breathless people who either are on oxygen or are yet to have it prescribed. Aim: To understand and describe the perspectives and experiences of breathless people towards oxygen use at home. Design: This qualitative study utilised an interpretive description approach using semi-structured interviews and thematic analysis. Setting/participants: A total of 19 people with chronic breathlessness syndrome living in South Australia participated in semi-structured interviews. Participants were divided into sub-groups according to whether they were chronically breathless and (1) not using home oxygen (n = 6), (2) using funded home oxygen for severe hypoxaemia (n = 7) and (3) using home oxygen for palliation outside of funding guidelines (n = 6). Results: Three main themes were identified: (1) managing distress and living with chronic breathlessness syndrome, with or without oxygen, requires a range of self-management strategies; (2) expectations of oxygen use: ‘Not as good as I thought it would be’; and (3) the stigma of using oxygen: the visible and invisible. Conclusion: People living with chronic breathlessness struggle daily with both the progression of the underlying disease and the distressing nature of the syndrome. While oxygen does provide benefit for some people, its use and the perceptions of its use are often associated with both the visible and invisible manifestations of stigma. Clinicians need to promote self-management strategies and give careful thought to the prescribing of home oxygen, especially outside the current funding guidelines. en
dc.format.medium Print-Electronic en
dc.language eng en
dc.relation.ispartofseries Palliative medicine en
dc.rights Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. en
dc.rights.uri https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm en
dc.subject Humans en
dc.subject Dyspnea en
dc.subject Chronic Disease en
dc.subject Home Nursing en
dc.subject Oxygen Inhalation Therapy en
dc.subject Age Factors en
dc.subject Qualitative Research en
dc.subject Adult en
dc.subject Aged en
dc.subject Aged, 80 and over en
dc.subject Middle Aged en
dc.subject South Australia en
dc.subject Female en
dc.subject Male en
dc.subject Social Stigma en
dc.title Stigma and the in(visible) perspectives and expectations of home oxygen therapy among people with chronic breathlessness syndrome: A qualitative study. en
dc.type Journal Article en
dc.identifier.doi 10.1177/0269216318805621 en
pubs.issue 1 en
pubs.begin-page 82 en
pubs.volume 33 en
dc.rights.holder Copyright: The author en
pubs.end-page 90 en
pubs.publication-status Published en
dc.rights.accessrights http://purl.org/eprint/accessRights/RestrictedAccess en
pubs.subtype Comparative Study en
pubs.subtype Research Support, Non-U.S. Gov't en
pubs.subtype Journal Article en
pubs.elements-id 754673 en
pubs.org-id Medical and Health Sciences en
pubs.org-id Nursing en
dc.identifier.eissn 1477-030X en
pubs.record-created-at-source-date 2018-10-10 en
pubs.dimensions-id 30296930 en


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