More than a bleeding nuisance: haemophilia in Aotearoa New Zealand

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dc.contributor.author Park, Julie
dc.contributor.author Scott, Kathryn
dc.contributor.author York, Deon
dc.contributor.author Carnahan, Michael
dc.date.accessioned 2021-05-05T23:38:17Z
dc.date.available 2021-05-05T23:38:17Z
dc.date.issued 2019
dc.identifier.isbn 0429646437
dc.identifier.isbn 9780367134440
dc.identifier.uri https://hdl.handle.net/2292/55020
dc.description.abstract Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. While the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions.
dc.publisher Routledge
dc.rights Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher.
dc.rights.uri https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm
dc.subject Science & Technology
dc.subject Life Sciences & Biomedicine
dc.subject Hematology
dc.subject 1103 Clinical Sciences
dc.title More than a bleeding nuisance: haemophilia in Aotearoa New Zealand
dc.type Book
dc.identifier.doi 10.4324/9780429026522
dc.date.updated 2021-04-06T21:13:54Z
dc.rights.holder Copyright: The author en
pubs.author-url https://www.google.co.nz/books/edition/Haemophilia_in_Aotearoa_New_Zealand/KiaFDwAAQBAJ
pubs.place-of-publication Abingdon, UK and New York, US
pubs.publication-status Published
dc.rights.accessrights http://purl.org/eprint/accessRights/RetrictedAccess en
pubs.elements-id 761547


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