dc.contributor.author |
Cavallaro, Paul M |
|
dc.contributor.author |
Fearnhead, Nicola S |
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dc.contributor.author |
Bissett, Ian P |
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dc.contributor.author |
Brar, Mantaj S |
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dc.contributor.author |
Cataldo, Thomas E |
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dc.contributor.author |
Clarke, Rasheed |
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dc.contributor.author |
Denoya, Paula |
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dc.contributor.author |
Elder, Amber L |
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dc.contributor.author |
Gecse, Krisztina B |
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dc.contributor.author |
Hendren, Samantha |
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dc.contributor.author |
Holubar, Stefan |
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dc.contributor.author |
Jeganathan, Nimalan |
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dc.contributor.author |
Myrelid, Pär |
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dc.contributor.author |
Norton, Beth-Anne |
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dc.contributor.author |
Wexner, Steven D |
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dc.contributor.author |
Wilson, Lauren |
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dc.contributor.author |
Zaghiyan, Karen |
|
dc.contributor.author |
Bordeianou, Liliana |
|
dc.contributor.author |
PROPS Delphi Study Expert Panels |
|
dc.coverage.spatial |
United States |
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dc.date.accessioned |
2021-07-19T21:49:50Z |
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dc.date.available |
2021-07-19T21:49:50Z |
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dc.date.issued |
2021-4-30 |
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dc.identifier.citation |
Diseases of the colon and rectum 64(7):861-870 Jul 2021 |
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dc.identifier.citation |
|
|
dc.identifier.issn |
0012-3706 |
|
dc.identifier.uri |
https://hdl.handle.net/2292/55620 |
|
dc.description.abstract |
<h4>Background</h4>Functional outcomes after ileoanal pouch creation have been studied; however, there is great variability in how relevant outcomes are defined and reported. More importantly, the perspective of patients has not been represented in deciding which outcomes should be the focus of research.<h4>Objective</h4>The primary aim was to create a patient-centered definition of core symptoms that should be included in future studies of pouch function.<h4>Design</h4>Delphi consensus study.<h4>Setting</h4>Three rounds of surveys were employed to select high priority items. Survey voting was followed by a series of online patient consultation meetings used to clarify voting trends. A final online consensus meeting with representation from all three expert panels was held to finalize a consensus statement.<h4>Patients</h4>Expert stakeholders were chosen to correlate with the clinical scenario of the multidisciplinary team that cares for pouch patients: patients, colorectal surgeons, gastroenterologists/other clinicians.<h4>Main outcome measures</h4>Consensus statement.<h4>Results</h4>One hundred ninety-five patients, 62 colorectal surgeons, and 48 gastroenterologists/nurse specialists completed all three Delphi rounds. 53 patients participated in online focus groups. 161 stakeholders participated in the final consensus meeting. On conclusion of the consensus meeting, seven bowel symptoms and seven consequences of undergoing ileoanal pouch surgery were included in the final consensus statement.<h4>Limitations</h4>Online recruitment bias.<h4>Conclusions</h4>This study is the first to identify key functional outcomes after pouch surgery with direct input from a large panel of ileoanal pouch patients. The inclusion of patients in all stages of the consensus process allowed for a true patient-centered approach in defining the core domains that should be focused on in future studies of pouch function. See Video Abstract at http://links.lww.com/DCR/B571. |
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dc.format.medium |
Print-Electronic |
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dc.language |
eng |
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dc.publisher |
Ovid Technologies (Wolters Kluwer Health) |
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dc.relation.ispartofseries |
Diseases of the colon and rectum |
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dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. |
|
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
|
dc.rights.uri |
https://cdn-tp2.mozu.com/16833-m1/cms/files/Author-Document.pdf?_mzts=636519775710000000 |
|
dc.subject |
PROPS Delphi Study Expert Panels |
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dc.subject |
1103 Clinical Sciences |
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dc.title |
Patients Undergoing Ileoanal Pouch Surgery Experience a Constellation of Symptoms and Consequences Representing a Unique Syndrome A Report from the Patient Reported Outcomes after Pouch Surgery (PROPS) Delphi Consensus Study. |
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dc.type |
Journal Article |
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dc.identifier.doi |
10.1097/dcr.0000000000002099 |
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pubs.volume |
Publish Ahead of Print |
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dc.date.updated |
2021-06-02T20:43:43Z |
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dc.rights.holder |
Copyright: The American Society of Colon & Rectal Surgeons, Inc. |
en |
pubs.author-url |
https://www.ncbi.nlm.nih.gov/pubmed/33938531 |
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pubs.publication-status |
Published |
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dc.rights.accessrights |
http://purl.org/eprint/accessRights/OpenAccess |
en |
pubs.subtype |
Journal Article |
|
pubs.elements-id |
852387 |
|
dc.identifier.eissn |
1530-0358 |
|
dc.identifier.pii |
00003453-900000000-99499 |
|