Living with Dementia in Aotearoa (LiDiA): a cross-sectional feasibility study protocol for a multiethnic dementia prevalence study in Aotearoa/New Zealand.

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dc.contributor.author Martinez-Ruiz, Adrian
dc.contributor.author Yates, Susan
dc.contributor.author Cheung, Gary
dc.contributor.author Dudley, Makarena
dc.contributor.author Krishnamurthi, Rita
dc.contributor.author Fa'alau, Fuafiva
dc.contributor.author Roberts, Mary
dc.contributor.author Taufa, Seini
dc.contributor.author Fa'alili-Fidow, Jacinta
dc.contributor.author Rivera-Rodriguez, Claudia
dc.contributor.author Kautoke, Staverton
dc.contributor.author Ma'u, Etuini
dc.contributor.author Kerse, Ngaire
dc.contributor.author Cullum, Sarah
dc.coverage.spatial England
dc.date.accessioned 2021-09-12T23:16:14Z
dc.date.available 2021-09-12T23:16:14Z
dc.date.issued 2021-5-3
dc.identifier.citation BMJ open 11(5):e046143 03 May 2021
dc.identifier.issn 2044-6055
dc.identifier.uri https://hdl.handle.net/2292/56512
dc.description.abstract <h4>Introduction</h4>Aotearoa/New Zealand (NZ) is officially recognised as a bicultural country composed of Māori and non-Māori. Recent estimations have projected a threefold increase in dementia prevalence in NZ by 2050, with the greatest increase in non-NZ-Europeans. The NZ government will need to develop policies and plan services to meet the demands of the rapid rise in dementia cases. However, to date, there are no national data on dementia prevalence and overseas data are used to estimate the NZ dementia statistics. The overall aim of the Living with Dementia in Aotearoa study was to prepare the groundwork for a large full-scale NZ dementia prevalence study.<h4>Methods and analysis</h4>The study has two phases. In phase I, we will adapt and translate the 10/66 dementia assessment protocol to be administered in Māori, Samoan, Tongan and Fijian-Indian elders. The diagnostic accuracy of the adapted 10/66 protocol will be tested in older people from these ethnic backgrounds who were assessed for dementia at a local memory service. In phase II, we will address the feasibility issues of conducting a population-based prevalence study by applying the adapted 10/66 protocol in South Auckland and will include NZ-European, Māori, Samoan, Tongan, Chinese and Fijian-Indian participants. The feasibility issues to be explored are as follows: (1) how do we sample to ensure we get accurate community representation? (2) how do we prepare a workforce to conduct the fieldwork and develop quality control? (3) how do we raise awareness of the study in the community to maximise recruitment? (4) how do we conduct door knocking to maximise recruitment? (5) how do we retain those we have recruited to remain in the study? (6) what is the acceptability of study recruitment and the 10/66 assessment process in different ethnic groups?<h4>Ethics and dissemination</h4>The validity and feasibility studies were approved by the New Zealand Northern A Health and Disability Ethics Committee (numbers 17NTA234 and 18NTA176, respectively). The findings will be disseminated through peer-reviewed academic journals, national and international conferences, and public events. Data will be available on reasonable request from the corresponding author.
dc.format.medium Electronic
dc.language eng
dc.publisher BMJ
dc.relation.ispartofseries BMJ open
dc.rights Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher.
dc.rights.uri https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm
dc.rights.uri https://creativecommons.org/licenses/by-nc/4.0/
dc.subject Humans
dc.subject Dementia
dc.subject Cross-Sectional Studies
dc.subject Feasibility Studies
dc.subject Aged
dc.subject Oceanic Ancestry Group
dc.subject New Zealand
dc.subject dementia
dc.subject geriatric medicine
dc.subject old age psychiatry
dc.subject public health
dc.subject Aged
dc.subject Cross-Sectional Studies
dc.subject Dementia
dc.subject Feasibility Studies
dc.subject Humans
dc.subject New Zealand
dc.subject Oceanic Ancestry Group
dc.subject Science & Technology
dc.subject Life Sciences & Biomedicine
dc.subject Medicine, General & Internal
dc.subject General & Internal Medicine
dc.subject dementia
dc.subject old age psychiatry
dc.subject geriatric medicine
dc.subject public health
dc.subject SAMPLE-SIZE
dc.subject DIAGNOSIS
dc.subject VALIDATION
dc.subject CAREGIVERS
dc.subject CONSENSUS
dc.subject 1103 Clinical Sciences
dc.subject 1117 Public Health and Health Services
dc.subject 1199 Other Medical and Health Sciences
dc.title Living with Dementia in Aotearoa (LiDiA): a cross-sectional feasibility study protocol for a multiethnic dementia prevalence study in Aotearoa/New Zealand.
dc.type Journal Article
dc.identifier.doi 10.1136/bmjopen-2020-046143
pubs.issue 5
pubs.begin-page e046143
pubs.volume 11
dc.date.updated 2021-08-10T06:48:39Z
dc.rights.holder Copyright: The author en
pubs.author-url https://www.ncbi.nlm.nih.gov/pubmed/33941631
pubs.publication-status Published
dc.rights.accessrights http://purl.org/eprint/accessRights/OpenAccess en
pubs.subtype other
pubs.subtype Research Support, Non-U.S. Gov't
pubs.subtype Journal Article
pubs.elements-id 852422
dc.identifier.eissn 2044-6055
dc.identifier.pii bmjopen-2020-046143
pubs.number ARTN e046143
pubs.online-publication-date 2021-5-3


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