dc.contributor.author |
Gardiner, Clare |
|
dc.contributor.author |
Robinson, Jackie |
|
dc.contributor.author |
Connolly, Michael |
|
dc.contributor.author |
Hulme, Claire |
|
dc.contributor.author |
Kang, Kristy |
|
dc.contributor.author |
Rowland, Christine |
|
dc.contributor.author |
Larkin, Phil |
|
dc.contributor.author |
Meads, David |
|
dc.contributor.author |
Morgan, Tessa |
|
dc.contributor.author |
Gott, Merryn |
|
dc.coverage.spatial |
England |
|
dc.date.accessioned |
2021-11-14T03:49:44Z |
|
dc.date.available |
2021-11-14T03:49:44Z |
|
dc.date.issued |
2020-5-19 |
|
dc.identifier.citation |
BMC palliative care 19(1):71 19 May 2020 |
|
dc.identifier.issn |
1472-684X |
|
dc.identifier.uri |
https://hdl.handle.net/2292/57413 |
|
dc.description.abstract |
<h4>Background</h4>Informal caregivers represent the foundation of the palliative care workforce and are the main providers of end of life care. Financial pressures are among the most serious concerns for many carers and the financial burden of end of life caregiving can be substantial.<h4>Methods</h4>The aim of this critical debate paper was to review and critique some of the key evidence on the financial costs of informal caregiving and describe how these costs represent an equity issue in palliative care.<h4>Results</h4>The financial costs of informal caregiving at the end of life can be significant and include carer time costs, out of pocket costs and employment related costs. Financial burden is associated with a range of negative outcomes for both patient and carer. Evidence suggests that the financial costs of caring are not distributed equitably. Sources of inequity are reflective of those influencing access to specialist palliative care and include diagnosis (cancer vs non-cancer), socio-economic status, gender, cultural and ethnic identity, and employment status. Effects of intersectionality and the cumulative effect of multiple risk factors are also a consideration.<h4>Conclusions</h4>Various groups of informal end of life carers are systematically disadvantaged financially. Addressing these, and other, determinants of end of life care is central to a public health approach to palliative care that fully recognises the value of carers. Further research exploring these areas of inequity in more depth and gaining a more detailed understanding of what influences financial burden is required to take the next steps towards meeting this aspiration. We will address the conclusions and recommendations we have made in this paper through the work of our recently established European Association of Palliative Care (EAPC) Taskforce on the financial costs of family caregiving. |
|
dc.format.medium |
Electronic |
|
dc.language |
eng |
|
dc.publisher |
Springer Science and Business Media LLC |
|
dc.relation.ispartofseries |
BMC palliative care |
|
dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. |
|
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
|
dc.rights.uri |
https://creativecommons.org/licenses/by/4.0/ |
|
dc.subject |
Humans |
|
dc.subject |
Patient Care |
|
dc.subject |
Palliative Care |
|
dc.subject |
Middle Aged |
|
dc.subject |
Caregivers |
|
dc.subject |
Health Care Costs |
|
dc.subject |
Female |
|
dc.subject |
Male |
|
dc.subject |
Caregiver |
|
dc.subject |
Costs |
|
dc.subject |
Economic |
|
dc.subject |
End of life care |
|
dc.subject |
Equity |
|
dc.subject |
Family carer |
|
dc.subject |
Financial |
|
dc.subject |
Inequity |
|
dc.subject |
Informal carer |
|
dc.subject |
Palliative care |
|
dc.subject |
Caregivers |
|
dc.subject |
Female |
|
dc.subject |
Health Care Costs |
|
dc.subject |
Humans |
|
dc.subject |
Male |
|
dc.subject |
Middle Aged |
|
dc.subject |
Palliative Care |
|
dc.subject |
Patient Care |
|
dc.subject |
Science & Technology |
|
dc.subject |
Life Sciences & Biomedicine |
|
dc.subject |
Health Care Sciences & Services |
|
dc.subject |
Health Policy & Services |
|
dc.subject |
Palliative care |
|
dc.subject |
End of life care |
|
dc.subject |
Financial |
|
dc.subject |
Economic |
|
dc.subject |
Costs |
|
dc.subject |
Family carer |
|
dc.subject |
Informal carer |
|
dc.subject |
Caregiver |
|
dc.subject |
Equity |
|
dc.subject |
Inequity |
|
dc.subject |
OF-LIFE CARE |
|
dc.subject |
END |
|
dc.subject |
FAMILY |
|
dc.subject |
CANCER |
|
dc.subject |
HEALTH |
|
dc.subject |
HOME |
|
dc.subject |
BARRIERS |
|
dc.subject |
PEOPLE |
|
dc.subject |
GENDER |
|
dc.subject |
STRAIN |
|
dc.subject |
1117 Public Health and Health Services |
|
dc.subject |
Population & Society |
|
dc.subject |
Health Services Research |
|
dc.subject |
Cancer |
|
dc.subject |
7.2 End of life care |
|
dc.subject |
1110 Nursing |
|
dc.subject |
1117 Public Health and Health Services |
|
dc.title |
Equity and the financial costs of informal caregiving in palliative care: a critical debate. |
|
dc.type |
Journal Article |
|
dc.identifier.doi |
10.1186/s12904-020-00577-2 |
|
pubs.issue |
1 |
|
pubs.begin-page |
71 |
|
pubs.volume |
19 |
|
dc.date.updated |
2021-10-19T20:38:35Z |
|
dc.rights.holder |
Copyright: The author |
en |
pubs.author-url |
https://www.ncbi.nlm.nih.gov/pubmed/32429888 |
|
pubs.publication-status |
Published |
|
dc.rights.accessrights |
http://purl.org/eprint/accessRights/OpenAccess |
en |
pubs.subtype |
research-article |
|
pubs.subtype |
Journal Article |
|
pubs.elements-id |
803037 |
|
dc.identifier.eissn |
1472-684X |
|
dc.identifier.pii |
10.1186/s12904-020-00577-2 |
|
pubs.number |
71 |
|
pubs.online-publication-date |
2020-5-19 |
|