dc.contributor.author |
Morgan, Tessa |
|
dc.contributor.author |
Bharmal, Aamena |
|
dc.contributor.author |
Duschinsky, Robbie |
|
dc.contributor.author |
Barclay, Stephen |
|
dc.coverage.spatial |
United States |
|
dc.date.accessioned |
2021-11-14T04:12:13Z |
|
dc.date.available |
2021-11-14T04:12:13Z |
|
dc.date.issued |
2020-1 |
|
dc.identifier.citation |
PloS one 15(6):e0232401 Jan 2020 |
|
dc.identifier.issn |
1932-6203 |
|
dc.identifier.uri |
https://hdl.handle.net/2292/57423 |
|
dc.description.abstract |
Population ageing has rapidly increased the number of people requiring end-of-life care across the globe. Governments have responded by promoting end-of-life in the community. Partly as a consequence, older spouses are frequently providing for their partner's end-of-life care at home, despite potentially facing their own health issues. While there is an emerging literature on young-old caregivers, less is known about spouse carers over 75 who are likely to face specific challenges associated with their advanced age and relationship status. The aim of this review, therefore, is to identify and synthesise the literature concerning the experiences of caregiver's aged 75 and over whose partner is approaching end-of-life. We conducted a mixed-method systematic review and narrative synthesis of the empirical literature published between 1985 and May 2019, identified from six databases: Medline, PsychINFO, Cumulative Index to Nursing and Allied Health Literature, Embase, Sociological Abstracts and Social Service Abstracts. Hand searching and reference checking were also conducted. Gough's Weight of Evidence and Morgan's Feminist Quality Appraisal tool used to determine the quality of papers. From the initial 7819 titles, 10 qualitative studies and 9 quantitative studies were included. We identified three themes: 1) "Embodied impact of care" whereby caring was found to negatively impact carers physical and psychological health, with adverse effects continuing into bereavement; 2) "Caregiving spouse's conceptualisation of their role" in which caregiver's navigated their self and marriage identities in relation to their partner's condition and expectations about gender and place; 3) "Learning to care" which involved learning new skills and ways of coping to remain able to provide care. We identified a recent up-surge in published papers about very old spousal caregivers, which now comprise a small, medium-quality evidence base. This review outlines a range of potential lines of inquiry for future research including further clarification of the impact of caregiving on the likelihood of mortality, the incidence of men and women providing end-of-life care amongst this age group, and the role of anticipatory grief in shaping their perceptions of their relationship and their own longevity. |
|
dc.format.medium |
Electronic-eCollection |
|
dc.language |
eng |
|
dc.publisher |
Public Library of Science (PLoS) |
|
dc.relation.ispartofseries |
PloS one |
|
dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. |
|
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
|
dc.rights.uri |
https://creativecommons.org/licenses/by/4.0/ |
|
dc.subject |
Humans |
|
dc.subject |
Terminal Care |
|
dc.subject |
Adaptation, Psychological |
|
dc.subject |
Spouses |
|
dc.subject |
Health Status |
|
dc.subject |
Databases, Factual |
|
dc.subject |
Caregivers |
|
dc.subject |
Adaptation, Psychological |
|
dc.subject |
Caregivers |
|
dc.subject |
Databases, Factual |
|
dc.subject |
Health Status |
|
dc.subject |
Humans |
|
dc.subject |
Spouses |
|
dc.subject |
Terminal Care |
|
dc.subject |
Science & Technology |
|
dc.subject |
Multidisciplinary Sciences |
|
dc.subject |
Science & Technology - Other Topics |
|
dc.subject |
NURSING-HOME PLACEMENT |
|
dc.subject |
FAMILY CAREGIVERS |
|
dc.subject |
PALLIATIVE CARE |
|
dc.subject |
ALZHEIMERS-DISEASE |
|
dc.subject |
GENDER-DIFFERENCES |
|
dc.subject |
FRAIL ELDERS |
|
dc.subject |
HEALTH |
|
dc.subject |
IMPACT |
|
dc.subject |
AGE |
|
dc.subject |
DEMENTIA |
|
dc.subject |
1117 Public Health and Health Services |
|
dc.subject |
Population & Society |
|
dc.subject |
Health Services Research |
|
dc.subject |
Basic Behavioral and Social Science |
|
dc.subject |
Behavioral and Social Science |
|
dc.subject |
Clinical Research |
|
dc.subject |
Aging |
|
dc.subject |
7.1 Individual care needs |
|
dc.subject |
8.1 Organisation and delivery of services |
|
dc.title |
Experiences of oldest-old caregivers whose partner is approaching end-of-life: A mixed-method systematic review and narrative synthesis. |
|
dc.type |
Journal Article |
|
dc.identifier.doi |
10.1371/journal.pone.0232401 |
|
pubs.issue |
6 |
|
pubs.begin-page |
e0232401 |
|
pubs.volume |
15 |
|
dc.date.updated |
2021-10-19T20:33:56Z |
|
dc.rights.holder |
Copyright: The author |
en |
pubs.author-url |
https://www.ncbi.nlm.nih.gov/pubmed/32516312 |
|
pubs.publication-status |
Published |
|
dc.rights.accessrights |
http://purl.org/eprint/accessRights/OpenAccess |
en |
pubs.subtype |
Research Support, Non-U.S. Gov't |
|
pubs.subtype |
research-article |
|
pubs.subtype |
Systematic Review |
|
pubs.subtype |
Journal Article |
|
pubs.elements-id |
814592 |
|
dc.identifier.eissn |
1932-6203 |
|
dc.identifier.pii |
PONE-D-19-26314 |
|
pubs.number |
ARTN e0232401 |
|
pubs.online-publication-date |
2020-6-9 |
|