A "pretty normal" life: a qualitative study exploring young people's experience of life with bronchiectasis.

Show simple item record

dc.contributor.author Blamires, Julie
dc.contributor.author Dickinson, Annette
dc.contributor.author Tautolo, El Shadan
dc.contributor.author Byrnes, Catherine A
dc.coverage.spatial United States
dc.date.accessioned 2022-06-15T02:10:08Z
dc.date.available 2022-06-15T02:10:08Z
dc.date.issued 2021-12
dc.identifier.citation (2021). International Journal of Qualitative Studies on Health and Well-being, 16(1), 2003520-.
dc.identifier.issn 1748-2623
dc.identifier.uri https://hdl.handle.net/2292/59884
dc.description.abstract <h4>Purpose</h4>Bronchiectasis is a chronic respiratory disease that impacts significantly on quality of life for those who have it. There is a paucity of literature exploring the perspectives of children and young people. The aim of this study was to examine the day-to-day life experience of a group of young people with bronchiectasis.<h4>Method</h4>A qualitative study using semi-structured interviews explored fifteen young people's perspectives of life with bronchiectasis. Key themes were identified using an inductive iterative approach through constant comparative analysis guided by Thorne's interpretive description.<h4>Results</h4>Life with bronchiectasis was conceptualized by participants as "Pretty Normal". This consisted of two co-existing life views which represented how young people balanced the ups and downs of adolescence while learning to accommodate the demands of living with bronchiectasis. Three key thematic elements "sore and tired", 'life interrupted and "looking after self", influenced and challenged these two views of life.<h4>Conclusions</h4>Young people with bronchiectasis portray life as being the same as their peers. Despite this, they recognized that the symptoms, interruptions, and self-management responsibilities led them to find ways of coping and integrating their experience into a new and modified view of normal.
dc.format.medium Print
dc.language eng
dc.publisher Informa UK Limited
dc.relation.ispartofseries International journal of qualitative studies on health and well-being
dc.rights Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher.
dc.rights.uri https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm
dc.rights.uri https://creativecommons.org/licenses/by/4.0/
dc.subject Humans
dc.subject Bronchiectasis
dc.subject Adaptation, Psychological
dc.subject Qualitative Research
dc.subject Quality of Life
dc.subject Adolescent
dc.subject Child
dc.subject Self-Management
dc.subject interpretive description
dc.subject normal life
dc.subject youth
dc.subject Pediatric
dc.subject Clinical Research
dc.subject 7.1 Individual care needs
dc.subject Science & Technology
dc.subject Social Sciences
dc.subject Life Sciences & Biomedicine
dc.subject Public, Environmental & Occupational Health
dc.subject Nursing
dc.subject Social Sciences, Biomedical
dc.subject Biomedical Social Sciences
dc.subject HEALTH-CARE
dc.subject ADOLESCENTS
dc.subject CHILDREN
dc.subject TRANSITION
dc.subject FAMILIES
dc.subject TEENAGERS
dc.subject 1117 Public Health and Health Services
dc.subject 1701 Psychology
dc.title A "pretty normal" life: a qualitative study exploring young people's experience of life with bronchiectasis.
dc.type Journal Article
dc.identifier.doi 10.1080/17482631.2021.2003520
pubs.issue 1
pubs.begin-page 2003520
pubs.volume 16
dc.date.updated 2022-05-26T02:31:32Z
dc.rights.holder Copyright: The author en
dc.identifier.pmid 34793292 (pubmed)
pubs.author-url https://www.ncbi.nlm.nih.gov/pubmed/34793292
pubs.publication-status Published
dc.rights.accessrights http://purl.org/eprint/accessRights/OpenAccess en
pubs.subtype research-article
pubs.subtype Journal Article
pubs.elements-id 874446
pubs.org-id Medical and Health Sciences
pubs.org-id School of Medicine
pubs.org-id Paediatrics Child & Youth Hlth
dc.identifier.eissn 1748-2631
pubs.number ARTN 2003520
pubs.record-created-at-source-date 2022-05-26
pubs.online-publication-date 2021-11-18

Files in this item

Find Full text

This item appears in the following Collection(s)

Show simple item record


Search ResearchSpace