dc.contributor.author |
Blamires, Julie |
|
dc.contributor.author |
Dickinson, Annette |
|
dc.contributor.author |
Byrnes, Catherine A |
|
dc.contributor.author |
Tautolo, El Shadan |
|
dc.coverage.spatial |
England |
|
dc.date.accessioned |
2022-06-20T01:34:24Z |
|
dc.date.available |
2022-06-20T01:34:24Z |
|
dc.date.issued |
2022-04-04 |
|
dc.identifier.citation |
(2022). Journal of Child Health Care, 13674935221082437-. |
|
dc.identifier.issn |
1367-4935 |
|
dc.identifier.uri |
https://hdl.handle.net/2292/60009 |
|
dc.description.abstract |
This qualitative study was conducted to explore the experiences of youth living with bronchiectasis in New Zealand (NZ). Semi-structured interviews were conducted with youth with bronchiectasis. Key themes were identified using an inductive approach through constant comparative analysis and guided by Thorne's interpretive description (ID). Fifteen young people of mixed ethnicity (nine females and six males) aged between 13 and 23 years participated. Three key themes 'sore and tired', 'life interrupted and 'looking after self' were identified. This paper will focus on 'sore and tired' and its three subthemes which describe the participants symptom experience. While there was variability in physical symptom patterns, cough, soreness and fatigue were prominent features impacting physical, emotional and social aspects of day-to-day life. All identified pervasive and profound fatigue as significant. The identification of prodromal symptoms provides opportunity for greater appreciation of the varied and personal symptom experience of young people with bronchiectasis. Early identification of these symptoms and inclusion within management plans for escalating treatment has the potential to improve outcomes, reducing delays in seeking additional medical management and preventing further exacerbation. |
|
dc.format.medium |
Print-Electronic |
|
dc.language |
eng |
|
dc.publisher |
SAGE Publications |
|
dc.relation.ispartofseries |
Journal of child health care : for professionals working with children in the hospital and community |
|
dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. |
|
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
|
dc.subject |
Adolescent |
|
dc.subject |
New Zealand |
|
dc.subject |
bronchiectasis |
|
dc.subject |
qualitative research |
|
dc.subject |
Behavioral and Social Science |
|
dc.subject |
Clinical Research |
|
dc.subject |
Prevention |
|
dc.subject |
Science & Technology |
|
dc.subject |
Life Sciences & Biomedicine |
|
dc.subject |
Nursing |
|
dc.subject |
Pediatrics |
|
dc.subject |
SUPPURATIVE LUNG-DISEASE |
|
dc.subject |
CHEST-PAIN |
|
dc.subject |
CHILDREN |
|
dc.subject |
MANAGEMENT |
|
dc.subject |
ADULTS |
|
dc.subject |
EXACERBATIONS |
|
dc.subject |
DIAGNOSIS |
|
dc.subject |
AUSTRALIA |
|
dc.subject |
TRENDS |
|
dc.subject |
1110 Nursing |
|
dc.subject |
1114 Paediatrics and Reproductive Medicine |
|
dc.subject |
1117 Public Health and Health Services |
|
dc.title |
Sore and tired. A qualitative study exploring the symptom experience of youth with bronchiectasis. |
|
dc.type |
Journal Article |
|
dc.identifier.doi |
10.1177/13674935221082437 |
|
pubs.begin-page |
13674935221082437 |
|
dc.date.updated |
2022-05-26T03:00:09Z |
|
dc.rights.holder |
Copyright: The author |
en |
dc.identifier.pmid |
35379016 (pubmed) |
|
pubs.author-url |
https://www.ncbi.nlm.nih.gov/pubmed/35379016 |
|
pubs.publication-status |
Published |
|
dc.rights.accessrights |
http://purl.org/eprint/accessRights/RestrictedAccess |
en |
pubs.subtype |
Journal Article |
|
pubs.elements-id |
895765 |
|
pubs.org-id |
Medical and Health Sciences |
|
pubs.org-id |
School of Medicine |
|
pubs.org-id |
Paediatrics Child & Youth Hlth |
|
dc.identifier.eissn |
1741-2889 |
|
pubs.number |
ARTN 13674935221082437 |
|
pubs.record-created-at-source-date |
2022-05-26 |
|
pubs.online-publication-date |
2022-04-04 |
|