dc.contributor.author |
Frey, Rosemary |
|
dc.contributor.author |
Barham, Sophia |
|
dc.contributor.author |
Balmer, Deborah |
|
dc.contributor.author |
Boyd, Michal |
|
dc.contributor.author |
Robinson, Jackie |
|
dc.contributor.author |
Gott, Merryn |
|
dc.coverage.spatial |
England |
|
dc.date.accessioned |
2022-06-20T22:02:51Z |
|
dc.date.available |
2022-06-20T22:02:51Z |
|
dc.date.issued |
2020-08-17 |
|
dc.identifier.citation |
(2020). BMC Palliative Care, 19(1), 127-. |
|
dc.identifier.issn |
1472-684X |
|
dc.identifier.uri |
https://hdl.handle.net/2292/60023 |
|
dc.description.abstract |
<h4>Background</h4>The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve palliative care within residential aged care facilities and to improve specialist palliative care nurses' knowledge and skill to care for frail older people.<h4>Method</h4>The experiences of 18 bereaved families concerning the palliative care journey (both at the start and finish of a one-year implementation of SHARE) were explored using semi-structured interviews.<h4>Results</h4>Three themes were important to bereaved families' experience: communication with staff, systems of care, and hospice involvement. Sub-themes indicating changes in these three components of care between the start and finish of SHARE was identified. A fourth theme highlighted challenges (relationship with GP, staff shortages, and turnover) that continued across SHARE.<h4>Conclusion</h4>Findings indicated that SHARE benefited families (improved communication and support) through the end of life journey of their relatives, but challenges remained. |
|
dc.format.medium |
Electronic |
|
dc.language |
eng |
|
dc.publisher |
Springer Science and Business Media LLC |
|
dc.relation.ispartofseries |
BMC palliative care |
|
dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. |
|
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
|
dc.rights.uri |
https://creativecommons.org/licenses/by/4.0/ |
|
dc.subject |
Humans |
|
dc.subject |
Palliative Care |
|
dc.subject |
Attitude of Health Personnel |
|
dc.subject |
Family |
|
dc.subject |
Professional-Family Relations |
|
dc.subject |
Qualitative Research |
|
dc.subject |
Adult |
|
dc.subject |
Aged |
|
dc.subject |
Aged, 80 and over |
|
dc.subject |
Middle Aged |
|
dc.subject |
Residential Facilities |
|
dc.subject |
Patient Satisfaction |
|
dc.subject |
New Zealand |
|
dc.subject |
Female |
|
dc.subject |
Male |
|
dc.subject |
Bereaved families |
|
dc.subject |
Older adults |
|
dc.subject |
Residential aged care |
|
dc.subject |
Aging |
|
dc.subject |
Clinical Research |
|
dc.subject |
Behavioral and Social Science |
|
dc.subject |
Pain Research |
|
dc.subject |
7.2 End of life care |
|
dc.subject |
8.1 Organisation and delivery of services |
|
dc.subject |
7.1 Individual care needs |
|
dc.subject |
Generic health relevance |
|
dc.subject |
Science & Technology |
|
dc.subject |
Life Sciences & Biomedicine |
|
dc.subject |
Health Care Sciences & Services |
|
dc.subject |
Health Policy & Services |
|
dc.subject |
LONG-TERM-CARE |
|
dc.subject |
NURSING-HOME RESIDENTS |
|
dc.subject |
OF-LIFE CARE |
|
dc.subject |
EDUCATIONAL INTERVENTION |
|
dc.subject |
MENTAL-HEALTH |
|
dc.subject |
OLDER-PEOPLE |
|
dc.subject |
END |
|
dc.subject |
COMMUNICATION |
|
dc.subject |
PERCEPTIONS |
|
dc.subject |
PERSPECTIVE |
|
dc.subject |
1110 Nursing |
|
dc.subject |
1117 Public Health and Health Services |
|
dc.subject |
Health services & systems |
|
dc.subject |
Health Services Research |
|
dc.title |
Palliative care delivery in residential aged care: bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention. |
|
dc.type |
Journal Article |
|
dc.identifier.doi |
10.1186/s12904-020-00633-x |
|
pubs.issue |
1 |
|
pubs.begin-page |
127 |
|
pubs.volume |
19 |
|
dc.date.updated |
2022-05-29T21:48:13Z |
|
dc.rights.holder |
Copyright: The author |
en |
dc.identifier.pmid |
32807170 (pubmed) |
|
pubs.author-url |
https://www.ncbi.nlm.nih.gov/pubmed/32807170 |
|
pubs.publication-status |
Published |
|
dc.rights.accessrights |
http://purl.org/eprint/accessRights/OpenAccess |
en |
pubs.subtype |
research-article |
|
pubs.subtype |
Journal Article |
|
pubs.elements-id |
810584 |
|
pubs.org-id |
Medical and Health Sciences |
|
pubs.org-id |
Nursing |
|
dc.identifier.eissn |
1472-684X |
|
dc.identifier.pii |
10.1186/s12904-020-00633-x |
|
pubs.number |
127 |
|
pubs.record-created-at-source-date |
2022-05-30 |
|
pubs.online-publication-date |
2020-08-17 |
|