DNA testing for cancer susceptibility : the needs of Maori

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dc.contributor.advisor Professor Ingrid Winship en
dc.contributor.advisor Professor Linda Smith en
dc.contributor.author Port, Ramari Viola (Waiora) en
dc.date.accessioned 2010-10-11T02:09:54Z en
dc.date.available 2010-10-11T02:09:54Z en
dc.date.issued 2007 en
dc.identifier.citation Thesis (PhD-- Molecular Medicine and Pathology/Maori and Pacific Health)--University of Auckland, 2007 en
dc.identifier.uri http://hdl.handle.net/2292/6026 en
dc.description.abstract An inherited predisposition to cancer may result from constitutional mutations in a number of tumour suppressor genes. Knowledge of the specific mutations with a family which render the individuals susceptible to bowel, breast or stomach cancer facilitates genetic testing. Genetic testing is a relatively new technology, and New Zealand society is still coming to terms with its ethical implications and informational potential. Maori people are the indigenous people of Aotearoa New Zealand. As a consequence of a colonial history that has had a major impact on Maori health, New Zealand is struggling to reduce significant disparities in the health status of Maori. With the exception of one high profile case, Maori people have not readily engaged in genetic testing or genetic counselling services. This thesis set out to examine Maori perspectives about this state. Drawing on a Kaupapa Maori approach to research, a group of Maori cultural commentators (Pukenga), Maori families (whanau), and health professionals who work with families (Interfacers) were interviewed for this study. The thesis discusses the different world views that Maori have in regards to health, wellbeing and human society. These world views help explain Maori cultural perspectives about predictive/presymptomatic DNA testing. The thesis draws on the notion of two worlds which may stand apart in terms of world view, but which have the potential to come together at the level of individual and family health and well-being. The thesis draws on the interviews and suggests pathways forwards in the area of genetic counselling and other services. While these pathways are relevant to Maori and the New Zealand context the study shows how other cultural groups with alternative world views may seek their own solutions and responses to the technologies available through predictive/presymptomatic DNA testing. en
dc.language.iso en en
dc.publisher ResearchSpace@Auckland en
dc.relation.ispartof PhD Thesis - University of Auckland en
dc.relation.isreferencedby UoA1713976 en
dc.rights Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. en
dc.rights.uri https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm en
dc.title DNA testing for cancer susceptibility : the needs of Maori en
dc.title.alternative He whakamatautau pi taua mo te mate pukupuku : nga tikanga a te ao maori en
dc.type Thesis en
thesis.degree.grantor The University of Auckland en
thesis.degree.level Doctoral en
thesis.degree.name PhD en
dc.rights.holder Copyright: The author en

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