Digital solutions for providing patients access to hospital-held health information: what are the design issues that need to be addressed?

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dc.contributor.author Dobson, Rosie
dc.contributor.author Baty, Chris
dc.contributor.author Best, Georgia
dc.contributor.author Wells, Susan
dc.contributor.author Wang, Keming
dc.contributor.author Hallett, Karen
dc.contributor.author Andrew, Penny
dc.contributor.author Whittaker, Robyn
dc.coverage.spatial New Zealand
dc.date.accessioned 2022-07-25T21:33:58Z
dc.date.available 2022-07-25T21:33:58Z
dc.date.issued 2022-06-10
dc.identifier.citation (2022). New Zealand Medical Journal, 135(1556), 114-123.
dc.identifier.issn 0028-8446
dc.identifier.uri https://hdl.handle.net/2292/60508
dc.description.abstract A patient and whānau centred healthcare system includes patients having easy access to their health records when and where they need it. Accessible digital solutions providing patients with access to their health information, including hospital-held healthcare records, will support patients and whānau to be active and informed participants in their health. A Northern Region proof-of-concept, providing patients with electronic access to their hospital-held health information, identified several challenges in the design of such "portals". The purpose of this paper is to present a discussion of these challenges, and to present a review of the literature on how other countries and health settings have managed them. The review has led to recommendations around how delegated access, auditing access, adding and correcting of information, the timing of test result availability, and retrospective records should be handled. However, more investigation is required into the challenges surrounding how various types of more sensitive information should be handled. There is still considerable work to be done on how to technically and operationally transform these "default design principles" into reality within the complexity of New Zealand hospitals' electronic health information systems.
dc.format.medium Electronic
dc.language eng
dc.relation.ispartofseries The New Zealand medical journal
dc.rights Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher.
dc.rights.uri https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm
dc.rights.uri https://journal.nzma.org.nz/journal-articles/digital-solutions-for-providing-patients-access-to-hospital-held-health-information-what-are-the-design-issues-that-need-to-be-addressed
dc.subject Patient Safety
dc.subject Health Services
dc.subject Networking and Information Technology R&D
dc.subject Clinical Research
dc.subject 8 Health and social care services research
dc.subject 8.1 Organisation and delivery of services
dc.subject Generic health relevance
dc.subject 3 Good Health and Well Being
dc.subject Electronic Health Records
dc.subject Hospitals
dc.subject Humans
dc.subject New Zealand
dc.subject Retrospective Studies
dc.subject 11 Medical and Health Sciences
dc.title Digital solutions for providing patients access to hospital-held health information: what are the design issues that need to be addressed?
dc.type Journal Article
pubs.issue 1556
pubs.begin-page 114
pubs.volume 135
dc.date.updated 2022-06-29T23:10:22Z
dc.rights.holder Copyright: The authors en
dc.identifier.pmid 35728254 (pubmed)
pubs.author-url https://www.ncbi.nlm.nih.gov/pubmed/35728254
pubs.end-page 123
pubs.publication-status Published
dc.rights.accessrights http://purl.org/eprint/accessRights/RetrictedAccess en
pubs.subtype Journal Article
pubs.elements-id 908642
pubs.org-id Medical and Health Sciences
pubs.org-id Population Health
pubs.org-id Epidemiology & Biostatistics
pubs.org-id Pacific Health
dc.identifier.eissn 1175-8716
pubs.record-created-at-source-date 2022-06-30


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