dc.contributor.author |
Gardiner, Clare |
|
dc.contributor.author |
Taylor, Beth |
|
dc.contributor.author |
Goodwin, Hetty |
|
dc.contributor.author |
Robinson, Jackie |
|
dc.contributor.author |
Gott, Merryn |
|
dc.coverage.spatial |
England |
|
dc.date.accessioned |
2022-10-20T03:14:23Z |
|
dc.date.available |
2022-10-20T03:14:23Z |
|
dc.date.issued |
2022-06 |
|
dc.identifier.citation |
(2022). Palliative Medicine, 36(6), 986-993. |
|
dc.identifier.issn |
0269-2163 |
|
dc.identifier.uri |
https://hdl.handle.net/2292/61649 |
|
dc.description.abstract |
<h4>Background</h4>Family caregivers provide the majority of palliative care. The impact of family caregiving on employment and finances has received little research attention in the field of palliative care.<h4>Aim</h4>The aim of this study was to explore perspectives and experiences of combining paid employment with palliative care family caregiving, and to assess the availability and suitability of employment support across three countries - the United Kingdom (UK), Aotearoa New Zealand and Canada.<h4>Design</h4>A qualitative descriptive study design was used. Semi-structured interviews were held with 30 key informants with professional or personal experience in palliative care from the UK (<i>n</i> = 15), Aotearoa New Zealand (<i>n</i> = 6) and Canada (<i>n</i> = 9). Interviews were recorded, transcribed and analysed using the principles of thematic analysis.<h4>Results</h4>Four main themes were identified: (1) significant changes to working practices are required to enable end of life family carers to remain in work; (2) the negative consequences of combining caregiving and employment are significant, for both patient and carer; (3) employer support for working end of life caregivers is crucial but variable and; (4) national, federal and government benefits for working end of life family carers are necessary.<h4>Conclusion</h4>Supporting carers to retain employment whilst providing care has potential benefits for the patient at end of life, the caregiver, and the wider economy and labour market. Employers, policymakers and governments have a role to play in developing and implementing policies to support working carers to remain in employment. |
|
dc.format.medium |
Print |
|
dc.language |
eng |
|
dc.publisher |
SAGE Publications |
|
dc.relation.ispartofseries |
Palliative medicine |
|
dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. |
|
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
|
dc.rights.uri |
https://creativecommons.org/licenses/by/4.0/ |
|
dc.subject |
Humans |
|
dc.subject |
Death |
|
dc.subject |
Palliative Care |
|
dc.subject |
Family |
|
dc.subject |
Qualitative Research |
|
dc.subject |
Caregivers |
|
dc.subject |
Employment |
|
dc.subject |
carers |
|
dc.subject |
end of life care |
|
dc.subject |
family caregivers |
|
dc.subject |
informal caregivers |
|
dc.subject |
Behavioral and Social Science |
|
dc.subject |
7.2 End of life care |
|
dc.subject |
7 Management of diseases and conditions |
|
dc.subject |
Generic health relevance |
|
dc.subject |
8 Decent Work and Economic Growth |
|
dc.subject |
Science & Technology |
|
dc.subject |
Life Sciences & Biomedicine |
|
dc.subject |
Health Care Sciences & Services |
|
dc.subject |
Public, Environmental & Occupational Health |
|
dc.subject |
Medicine, General & Internal |
|
dc.subject |
General & Internal Medicine |
|
dc.subject |
OF-LIFE CARE |
|
dc.subject |
SAMPLE-SIZE |
|
dc.subject |
END |
|
dc.subject |
COSTS |
|
dc.subject |
HOME |
|
dc.subject |
1117 Public Health and Health Services |
|
dc.subject |
1199 Other Medical and Health Sciences |
|
dc.title |
Employment and family caregiving in palliative care: An international qualitative study. |
|
dc.type |
Journal Article |
|
dc.identifier.doi |
10.1177/02692163221089134 |
|
pubs.issue |
6 |
|
pubs.begin-page |
986 |
|
pubs.volume |
36 |
|
dc.date.updated |
2022-09-07T21:54:48Z |
|
dc.rights.holder |
Copyright: The authors |
en |
dc.identifier.pmid |
35848213 (pubmed) |
|
pubs.author-url |
https://www.ncbi.nlm.nih.gov/pubmed/35848213 |
|
pubs.end-page |
993 |
|
pubs.publication-status |
Published |
|
dc.rights.accessrights |
http://purl.org/eprint/accessRights/OpenAccess |
en |
pubs.subtype |
Research Support, Non-U.S. Gov't |
|
pubs.subtype |
research-article |
|
pubs.subtype |
Journal Article |
|
pubs.elements-id |
907423 |
|
pubs.org-id |
Medical and Health Sciences |
|
pubs.org-id |
Nursing |
|
dc.identifier.eissn |
1477-030X |
|
pubs.record-created-at-source-date |
2022-09-08 |
|
pubs.online-publication-date |
2022-06-06 |
|