dc.contributor.author |
Dehkhoda, Aida |
|
dc.contributor.author |
Owens, R Glynn |
|
dc.contributor.author |
Malpas, Phillipa J |
|
dc.coverage.spatial |
United States |
|
dc.date.accessioned |
2023-03-09T03:11:58Z |
|
dc.date.available |
2023-03-09T03:11:58Z |
|
dc.date.issued |
2020-11 |
|
dc.identifier.citation |
(2020). Qualitative Health Research, 30(13), 2077-2091. |
|
dc.identifier.issn |
1049-7323 |
|
dc.identifier.uri |
https://hdl.handle.net/2292/63240 |
|
dc.description.abstract |
Alongside increasing rates of dementia diagnoses worldwide, efforts to seek alternative end-of-life options also increase. While the concept of assisted dying remains controversial, the discussion around its provision for people with dementia raises even more sensitivity. In this study, we explored how the practice of assisted dying for people with dementia is conceptualized and understood using the shared narratives of online contributors. An observational netnography over 20 months was carried out within five open Facebook communities. Thematic analysis was conducted on 1,007 online comments about assisted dying and dementia. Results reflected four central themes and five subthemes: understanding dementia; understanding assisted dying laws; caregivers' feelings; and moral/personal dilemmas. Findings reveal that the majority of communities' contributors fear developing dementia. They support the provision of advance euthanasia directives-written by competent patients-to prevent unnecessary suffering, and protect patients' wishes and freedom of choice when decision-making competency is lost. |
|
dc.format.medium |
Print-Electronic |
|
dc.language |
eng |
|
dc.publisher |
SAGE Publications |
|
dc.relation.ispartofseries |
Qualitative health research |
|
dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. |
|
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
|
dc.subject |
Humans |
|
dc.subject |
Dementia |
|
dc.subject |
Death |
|
dc.subject |
Suicide, Assisted |
|
dc.subject |
Advance Directives |
|
dc.subject |
Caregivers |
|
dc.subject |
assisted dying |
|
dc.subject |
carers |
|
dc.subject |
netnography mothod |
|
dc.subject |
online communities |
|
dc.subject |
qualitative |
|
dc.subject |
suffering |
|
dc.subject |
Alzheimer's Disease |
|
dc.subject |
Clinical Trials and Supportive Activities |
|
dc.subject |
Alzheimer's Disease including Alzheimer's Disease Related Dementias (AD/ADRD) |
|
dc.subject |
Clinical Research |
|
dc.subject |
Brain Disorders |
|
dc.subject |
Acquired Cognitive Impairment |
|
dc.subject |
Aging |
|
dc.subject |
Neurodegenerative |
|
dc.subject |
Neurological |
|
dc.subject |
Science & Technology |
|
dc.subject |
Social Sciences |
|
dc.subject |
Life Sciences & Biomedicine |
|
dc.subject |
Technology |
|
dc.subject |
Public, Environmental & Occupational Health |
|
dc.subject |
Information Science & Library Science |
|
dc.subject |
Social Sciences, Interdisciplinary |
|
dc.subject |
Social Sciences, Biomedical |
|
dc.subject |
Social Sciences - Other Topics |
|
dc.subject |
Biomedical Social Sciences |
|
dc.subject |
HEALTH-CARE PROFESSIONALS |
|
dc.subject |
OF-LIFE DECISIONS |
|
dc.subject |
QUALITATIVE RESEARCH |
|
dc.subject |
INCOMPETENT PATIENTS |
|
dc.subject |
ALZHEIMERS-DISEASE |
|
dc.subject |
PALLIATIVE CARE |
|
dc.subject |
MEDICAL AID |
|
dc.subject |
EUTHANASIA |
|
dc.subject |
ATTITUDES |
|
dc.subject |
1103 Clinical Sciences |
|
dc.subject |
Population & Society |
|
dc.subject |
11 Medical and Health Sciences |
|
dc.subject |
16 Studies in Human Society |
|
dc.subject |
17 Psychology and Cognitive Sciences |
|
dc.title |
A Netnographic Approach: Views on Assisted Dying for Individuals With Dementia |
|
dc.type |
Journal Article |
|
dc.identifier.doi |
10.1177/1049732320925795 |
|
pubs.issue |
13 |
|
pubs.begin-page |
2077 |
|
pubs.volume |
30 |
|
dc.date.updated |
2023-02-09T01:08:59Z |
|
dc.rights.holder |
Copyright: The authors |
en |
dc.identifier.pmid |
32564696 (pubmed) |
|
pubs.author-url |
https://www.ncbi.nlm.nih.gov/pubmed/32564696 |
|
pubs.end-page |
2091 |
|
pubs.publication-status |
Published |
|
dc.rights.accessrights |
http://purl.org/eprint/accessRights/RetrictedAccess |
en |
pubs.subtype |
Journal Article |
|
pubs.elements-id |
804961 |
|
pubs.org-id |
Medical and Health Sciences |
|
pubs.org-id |
School of Medicine |
|
pubs.org-id |
Psychological Medicine Dept |
|
dc.identifier.eissn |
1552-7557 |
|
pubs.number |
ARTN 1049732320925795 |
|
pubs.record-created-at-source-date |
2023-02-09 |
|
pubs.online-publication-date |
2020-06-20 |
|