dc.contributor.author |
Gott, Merryn |
|
dc.contributor.author |
Robinson, Jackie |
|
dc.contributor.author |
Moeke-Maxwell, Tess |
|
dc.contributor.author |
Black, Stella |
|
dc.contributor.author |
Williams, Lisa |
|
dc.contributor.author |
Wharemate, Rawiri |
|
dc.contributor.author |
Wiles, Janine |
|
dc.coverage.spatial |
England |
|
dc.date.accessioned |
2023-03-09T03:45:39Z |
|
dc.date.available |
2023-03-09T03:45:39Z |
|
dc.date.issued |
2019-07 |
|
dc.identifier.citation |
(2019). Palliative Medicine, 33(7), 793-801. |
|
dc.identifier.issn |
0269-2163 |
|
dc.identifier.uri |
https://hdl.handle.net/2292/63242 |
|
dc.description.abstract |
<h4>Background</h4>Hospitals are important sites of end-of-life care, particularly for older people. A need has been identified to understand best practice in hospital end-of-life care from the service-user perspective.<h4>Aim</h4>The aim of this study was to identify examples of good care received in the hospital setting during the last 3 months of life for people dying in advanced age from the perspective of bereaved family members.<h4>Design</h4>A social constructionist framework underpinned a qualitative research design. Data were analysed thematically drawing on an appreciative enquiry framework.<h4>Setting/participants</h4>Interviews were conducted with 58 bereaved family carers nominated by 52 people aged >80 years participating in a longitudinal study of ageing. Data were analysed for the 21 of 34 cases where family members were 'extremely' or 'very' satisfied with a public hospital admission their older relative experienced in their last 3 months of life.<h4>Results</h4>Participants' accounts of good care aligned with Dewar and Nolan's relation-centred compassionate care model: (1) a relationship based on empathy; (2) effective interactions between patients/families and staff; (3) contextualised knowledge of the patient/family; and (4) patients/families being active participants in care. We extended the model to the bicultural context of Aotearoa, New Zealand.<h4>Conclusion</h4>We identify concrete actions that clinicians working in acute hospitals can integrate into their practice to deliver end-of-life care with which families are highly satisfied. Further research is required to support the implementation of the relation-centred compassionate care model within hospitals, with suitable adaptations for local context, and explore the subsequent impact on patients, families and staff. |
|
dc.format.medium |
Print-Electronic |
|
dc.language |
eng |
|
dc.publisher |
SAGE Publications |
|
dc.relation.ispartofseries |
Palliative medicine |
|
dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. |
|
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
|
dc.subject |
Humans |
|
dc.subject |
Hospitalization |
|
dc.subject |
Terminal Care |
|
dc.subject |
Longitudinal Studies |
|
dc.subject |
Bereavement |
|
dc.subject |
Family |
|
dc.subject |
Qualitative Research |
|
dc.subject |
Aged, 80 and over |
|
dc.subject |
New Zealand |
|
dc.subject |
Female |
|
dc.subject |
Male |
|
dc.subject |
Interviews as Topic |
|
dc.subject |
80 and over |
|
dc.subject |
Hospitals |
|
dc.subject |
aged |
|
dc.subject |
caregivers |
|
dc.subject |
family–staff relations |
|
dc.subject |
indigenous populations |
|
dc.subject |
palliative care |
|
dc.subject |
public health |
|
dc.subject |
Clinical Research |
|
dc.subject |
Aging |
|
dc.subject |
7.1 Individual care needs |
|
dc.subject |
8.1 Organisation and delivery of services |
|
dc.subject |
7 Management of diseases and conditions |
|
dc.subject |
7.2 End of life care |
|
dc.subject |
8 Health and social care services research |
|
dc.subject |
7.3 Management and decision making |
|
dc.subject |
Generic health relevance |
|
dc.subject |
3 Good Health and Well Being |
|
dc.subject |
Science & Technology |
|
dc.subject |
Life Sciences & Biomedicine |
|
dc.subject |
Health Care Sciences & Services |
|
dc.subject |
Public, Environmental & Occupational Health |
|
dc.subject |
Medicine, General & Internal |
|
dc.subject |
General & Internal Medicine |
|
dc.subject |
family-staff relations |
|
dc.subject |
EXPERIENCES |
|
dc.subject |
COMPASSION |
|
dc.subject |
PATIENT |
|
dc.subject |
DEATHS |
|
dc.subject |
MODEL |
|
dc.subject |
1117 Public Health and Health Services |
|
dc.subject |
Health services & systems |
|
dc.subject |
Health Services Research |
|
dc.subject |
1199 Other Medical and Health Sciences |
|
dc.title |
'It was peaceful, it was beautiful': A qualitative study of family understandings of good end-of-life care in hospital for people dying in advanced age. |
|
dc.type |
Journal Article |
|
dc.identifier.doi |
10.1177/0269216319843026 |
|
pubs.issue |
7 |
|
pubs.begin-page |
793 |
|
pubs.volume |
33 |
|
dc.date.updated |
2023-02-23T19:16:46Z |
|
dc.rights.holder |
Copyright: The authors |
en |
dc.identifier.pmid |
31027476 (pubmed) |
|
pubs.author-url |
https://www.ncbi.nlm.nih.gov/pubmed/31027476 |
|
pubs.end-page |
801 |
|
pubs.publication-status |
Published |
|
dc.rights.accessrights |
http://purl.org/eprint/accessRights/RetrictedAccess |
en |
pubs.subtype |
Research Support, Non-U.S. Gov't |
|
pubs.subtype |
Journal Article |
|
pubs.elements-id |
769947 |
|
pubs.org-id |
Medical and Health Sciences |
|
pubs.org-id |
Nursing |
|
pubs.org-id |
Population Health |
|
pubs.org-id |
Social & Community Health |
|
dc.identifier.eissn |
1477-030X |
|
pubs.record-created-at-source-date |
2023-02-24 |
|
pubs.online-publication-date |
2019-04-26 |
|