dc.contributor.author |
Gardiner, Clare |
|
dc.contributor.author |
Taylor, Beth |
|
dc.contributor.author |
Robinson, Jackie |
|
dc.contributor.author |
Gott, Merryn |
|
dc.coverage.spatial |
England |
|
dc.date.accessioned |
2023-07-17T05:03:49Z |
|
dc.date.available |
2023-07-17T05:03:49Z |
|
dc.date.issued |
2019-10 |
|
dc.identifier.citation |
(2019). Palliative Medicine, 33(9), 1189-1211. |
|
dc.identifier.issn |
0269-2163 |
|
dc.identifier.uri |
https://hdl.handle.net/2292/64825 |
|
dc.description.abstract |
BACKGROUND:Family caregivers of people at the end of life can face significant financial burden. While appropriate financial support can reduce the burden for family caregivers, little is known about the range and adequacy of financial support, welfare and benefits for family caregivers across countries with similarly developed health care systems. AIM:The aim is o identify and compare sources of financial support for family caregivers of people approaching the end of life, across six countries with similarly performing health care systems (Australia, Canada, Ireland, New Zealand, the United Kingdom and the United States). DESIGN:A survey of financial support, welfare and benefits for end of life family caregivers was completed by 99 palliative care experts from the six countries. Grey literature searches and academic database searches were also conducted. Comparative analyses of all data sources documented financial support within and between each country. RESULTS:Some form of financial support for family caregivers is available in all six countries; however the type, extent and reach of support vary. Financial support is administered by multiple agencies, eligibility criteria for receiving support are numerous and complex, and there is considerable inequity in the provision of support. CONCLUSION:Numerous barriers exist to the receipt of financial support, welfare and benefits. We identified several areas of concern, including a lack of clarity around eligibility, inconsistent implementation, complexity in process and limited support for working carers. Nonetheless, there is significant potential for policymakers to learn from other countries' experiences, particularly with regard to the scope and operationalisation of financial support. |
|
dc.format.medium |
Print-Electronic |
|
dc.language |
eng |
|
dc.publisher |
SAGE Publications |
|
dc.relation.ispartofseries |
Palliative medicine |
|
dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. |
|
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
|
dc.subject |
Family caregivers |
|
dc.subject |
carers |
|
dc.subject |
costs |
|
dc.subject |
end of life care |
|
dc.subject |
financial burden |
|
dc.subject |
informal caregivers |
|
dc.subject |
palliative care |
|
dc.subject |
Australia |
|
dc.subject |
Canada |
|
dc.subject |
Caregivers |
|
dc.subject |
Cost of Illness |
|
dc.subject |
Family |
|
dc.subject |
Humans |
|
dc.subject |
Ireland |
|
dc.subject |
New Zealand |
|
dc.subject |
Social Support |
|
dc.subject |
Terminal Care |
|
dc.subject |
United Kingdom |
|
dc.subject |
United States |
|
dc.subject |
Behavioral and Social Science |
|
dc.subject |
Health Services |
|
dc.subject |
Clinical Research |
|
dc.subject |
7 Management of diseases and conditions |
|
dc.subject |
7.2 End of life care |
|
dc.subject |
Generic health relevance |
|
dc.subject |
3 Good Health and Well Being |
|
dc.subject |
Science & Technology |
|
dc.subject |
Life Sciences & Biomedicine |
|
dc.subject |
Health Care Sciences & Services |
|
dc.subject |
Public, Environmental & Occupational Health |
|
dc.subject |
Medicine, General & Internal |
|
dc.subject |
General & Internal Medicine |
|
dc.subject |
INFORMAL CARERS |
|
dc.subject |
RESPITE |
|
dc.subject |
HOME |
|
dc.subject |
1117 Public Health and Health Services |
|
dc.subject |
Health services & systems |
|
dc.subject |
Health Services Research |
|
dc.subject |
1199 Other Medical and Health Sciences |
|
dc.title |
Comparison of financial support for family caregivers of people at the end of life across six countries: A descriptive study. |
|
dc.type |
Journal Article |
|
dc.identifier.doi |
10.1177/0269216319861925 |
|
pubs.issue |
9 |
|
pubs.begin-page |
1189 |
|
pubs.volume |
33 |
|
dc.date.updated |
2023-06-28T05:04:42Z |
|
dc.rights.holder |
Copyright: The authors |
en |
dc.identifier.pmid |
31296108 (pubmed) |
|
pubs.author-url |
https://www.ncbi.nlm.nih.gov/pubmed/31296108 |
|
pubs.end-page |
1211 |
|
pubs.publication-status |
Published |
|
dc.rights.accessrights |
http://purl.org/eprint/accessRights/RetrictedAccess |
en |
pubs.subtype |
Research Support, Non-U.S. Gov't |
|
pubs.subtype |
Journal Article |
|
pubs.elements-id |
777183 |
|
pubs.org-id |
Medical and Health Sciences |
|
pubs.org-id |
Nursing |
|
dc.identifier.eissn |
1477-030X |
|
pubs.number |
ARTN 0269216319861925 |
|
pubs.record-created-at-source-date |
2023-06-28 |
|
pubs.online-publication-date |
2019-07-12 |
|