dc.contributor.author |
Earle, Nikki J |
|
dc.contributor.author |
Kerr, Andrew J |
|
dc.contributor.author |
Legget, Malcolm |
|
dc.contributor.author |
Wu, Billy P |
|
dc.contributor.author |
Doughty, Robert N |
|
dc.contributor.author |
Poppe, Katrina K |
|
dc.coverage.spatial |
England |
|
dc.date.accessioned |
2024-05-07T00:46:54Z |
|
dc.date.available |
2024-05-07T00:46:54Z |
|
dc.date.issued |
2021-10 |
|
dc.identifier.citation |
(2021). European Heart Journal - Quality of Care and Clinical Outcomes, 7(6), 542-547. |
|
dc.identifier.issn |
2058-5225 |
|
dc.identifier.uri |
https://hdl.handle.net/2292/68239 |
|
dc.description.abstract |
Aims:
Clinical registry-derived data are widely used to represent patient populations. In New Zealand (NZ), a national registry—the All New Zealand Acute Coronary Syndrome Quality Improvement (ANZACS-QI) registry—aims to include all patients undergoing coronary angiography; other acute coronary syndrome (ACS) patients are also registered but without complete capture. This study compares national hospitalization data of all first-time ACS admissions in NZ with patients in the ANZACS-QI registry, to investigate the use of clinical registry-derived data in research and in assessing clinical care.
Methods and results:
Patients admitted with first-time ACS in the NZ National Hospitalisation Dataset between 1 January 2015 and 31 December 2016 were included. Clinical characteristics and time to 12-month clinical outcomes were compared between patients captured and not-captured in the registry. A total of 16 569 patients were admitted with first-time ACS, median age 69 years, 61% male; 60% (n = 9918) were enrolled in ANZACS-QI. Registry-captured patients were younger, more often male, and with a lower comorbidity burden than non-captured patients. Overall, 16% patients died within 12 months, 15% experienced a non-fatal cardiovascular (CV) readmission, and 28% either died or were readmitted. Patients not captured in the registry were more than twice as likely to have experienced death or a non-fatal CV readmission within 12 months as captured patients.
Conclusions:
First-time ACS patients captured in the ANZACS-QI registry had very different clinical characteristics and outcomes than those not captured. Cardiovascular registry-derived data are dependent on registry design and may not be representative of the wider patient population; this must be considered when using registry-derived data. |
|
dc.format.medium |
Print |
|
dc.language |
eng |
|
dc.publisher |
Oxford University Press (OUP) |
|
dc.relation.ispartofseries |
European heart journal. Quality of care & clinical outcomes |
|
dc.rights |
Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. |
|
dc.rights.uri |
https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htm |
|
dc.rights.uri |
https://academic.oup.com/pages/standard-publication-reuse-rights |
|
dc.subject |
Acute coronary syndromes |
|
dc.subject |
Clinical registries |
|
dc.subject |
4203 Health Services and Systems |
|
dc.subject |
42 Health Sciences |
|
dc.subject |
Heart Disease - Coronary Heart Disease |
|
dc.subject |
Atherosclerosis |
|
dc.subject |
Heart Disease |
|
dc.subject |
Cardiovascular |
|
dc.subject |
Clinical Research |
|
dc.subject |
3 Good Health and Well Being |
|
dc.subject |
Science & Technology |
|
dc.subject |
Life Sciences & Biomedicine |
|
dc.subject |
Cardiac & Cardiovascular Systems |
|
dc.subject |
Cardiovascular System & Cardiology |
|
dc.subject |
ACUTE MYOCARDIAL-INFARCTION |
|
dc.subject |
QUALITY IMPROVEMENT |
|
dc.subject |
INTERVENTION |
|
dc.subject |
GUIDELINES |
|
dc.subject |
NETWORK |
|
dc.subject |
SWEDEN |
|
dc.subject |
1117 Public Health and Health Services |
|
dc.subject |
Clinical |
|
dc.subject |
Clinical Medicine and Science |
|
dc.subject |
3201 Cardiovascular medicine and haematology |
|
dc.subject |
4206 Public health |
|
dc.title |
Acute coronary syndrome registry enrolment status: differences in patient characteristics and outcomes and implications for registry data use (ANZACS-QI 36) |
|
dc.type |
Journal Article |
|
dc.identifier.doi |
10.1093/ehjqcco/qcz046 |
|
pubs.issue |
6 |
|
pubs.begin-page |
542 |
|
pubs.volume |
7 |
|
dc.date.updated |
2024-04-12T01:09:55Z |
|
dc.rights.holder |
Copyright: The authors |
en |
dc.identifier.pmid |
31393578 (pubmed) |
|
pubs.author-url |
https://academic.oup.com/ehjqcco/article/7/6/542/5545079 |
|
pubs.end-page |
547 |
|
pubs.publication-status |
Published |
|
dc.rights.accessrights |
http://purl.org/eprint/accessRights/RetrictedAccess |
en |
pubs.subtype |
Journal Article |
|
pubs.elements-id |
783314 |
|
pubs.org-id |
Medical and Health Sciences |
|
pubs.org-id |
School of Medicine |
|
pubs.org-id |
Medicine Department |
|
pubs.org-id |
Surgery Department |
|
dc.identifier.eissn |
2058-1742 |
|
dc.identifier.pii |
5545079 |
|
pubs.record-created-at-source-date |
2024-04-12 |
|
pubs.online-publication-date |
2019-08-08 |
|