Franke, NikeRogers, JenniferWouldes, TreciaWard, KimBrown, GavinJonas, MoniqueKeegan, PeterHarding, Jane2025-01-122025-01-122021-03-16(2021). Journal of Paediatrics and Child Health, 56(S1).1034-4810https://hdl.handle.net/2292/71030Abstract Background: Long‐term follow‐up is necessary to understand the impact of perinatal interventions. Exploring parents' motives and experiences in consenting to their children taking part in longitudinal studies and understanding what outcomes are important to families may enhance participation and mitigate the loss to follow‐up. As existing evidence is largely based on investigators' perspectives using Western samples, the present pilot study explored parents' perspectives in a multicultural New Zealand context. Methods: Data were generated using semi‐structured interviews with parents whose children had participated in a longitudinal study after neonatal recruitment. Parents' experiences of being part of the study were analysed thematically using an inductive approach. Results: Parents (n = 16) were generally happy with the outcomes measured. Additionally, parents were interested in lifelong goals such as the impact of parental diabetes. We identified three themes: (1) Facilitators: Research participation was aided by motives and parent and research characteristics such as wishing to help others and straightforward recruitment; (2) Barriers: A hesitancy to participate was due to technical and clinical research aspects, participation burden and cultural barriers, such as complex wording, time commitment and nonindigenous research and (3) Benefits: Children and parents experienced advantages such as the opportunity for education. Conclusions: Parents reported positive experiences and described the unexpected benefit of increasing families' health knowledge through participation. Improvements for current follow‐up studies were identified. Different ethnicities reported different experiences and perspectives, which warrants ongoing research, particularly with indigenous research participants.Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher.https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htmconsumer engagementenabling factorsindigenouslong‐term researchpaediatric trialparticipant experienceresearch interestsHealth and Community Services1103 Clinical Sciences1114 Paediatrics and Reproductive Medicine1117 Public Health and Health Services3213 PaediatricsConference Item10.17608/k6.auckland.19595506.v1Copyright: The authors