User involvement in cancer care: Exclusion and empowerment

Abstract

This publication, based on a study conducted in the Trent Region of the NHS, identifies the various ways in which user involvement has developed in relation to cancer care. Most people in the UK will have direct experience of cancer, either as a patient themselves or when someone close to them is a patient. The findings presented here have widespread significance. However their relevance goes beyond cancer. When considering user involvement in relation to other areas of need, looking to the experiences of cancer care can provide guidelines. Specific guidelines are included on how to develop user involvement from both a user and provider perspective.